[paulcjwParticipant]

Thank you!!! Just wanted to share as this forum, and yourself, have us so much hope as an ultra high risk patient. Going to stay in a villa just the 2 of us to eliminate the risk and will wear masks on the plane. I think the last 5 years have made us realise that life is for living and to enjoy every moment. ❤️

[paulcjwParticipant]

Hi all would just like to give you an update – my husband had his stem cell in February this year. Classed as ultra high risk cytogenetics and on the radar trial. Went to see consultant today and in remission – MRD! Elated with this news – had a Bumpy road to get to here and a long way to go yet but he’s doing so well. Looking at booking a holiday this week. Thought I would share this with everyone as all your messages gave us so much hope.

[paulcjwParticipant]

This is such a lovely post and I thank you from the bottom of my heart for giving even more hope. I am sending all my love to you for a very very long remission. Myeloma is treatable and that is what we all need to focus on ❤️ thanks again.

[paulcjwParticipant]

This is such a lovely post and I thank you from the bottom of my heart for giving even more hope. I am sending all my love to you for a very very long remission. Myeloma is treatable and that is what we all need to focus on ❤️ thanks again.

[paulcjwParticipant]

Sorry FGFR! When I googled it it it said 4,14 which I think is the same as you. Lovely to hear you are doing so well. I am so pleased for you and thank you for being so kind to reply to messages. Enjoy your holiday 😊

[paulcjwParticipant]

Hi

Thanks for your reply. Sorry for the late response I was waiting until we had his appointment. He is now classed as ultra high risk as he has 2 high risk – gaining of 1q and FDFR which when I have looked is t 4,14, so it sounds very similar. He starts the RADAR trial in 2 weeks.

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