[paulineParticipant]

Thanks Eve, I might take you up on that! I think our outlook on life is the same. I believe you should make the most of today and enjoy every minute of it. We dont have a lot of money but we have each other which is far better than anything else. I try to turn every negative into a positive (not always easy!) but it works for me. MM took over our lives for 2 yrs but this yr we have tried to control IT as opposed to letting IT control us. We are lucky to be in a good place at the moment. It took Grah quite a while to recover from the SCT and whilst he is unikely to be able to do all the things he could before the transplant, he doesn't do too badly so we cant grumble, far from it in fact.
I am glad Slim is doing well. It is a slow recovery but I truly believe that keeping positive does help.

Pauline

[paulineParticipant]

Hi Eve..

What a lovely post indeed. It is amazing how we all keep smiling and put on a brave face. Do we all do that? Do we all say "well there is always someone else worse off"? I know I do. Grah (hubby) is now 2 yrs post transplant (well he will be next month). Oh boy what a journey it has been but it has made us even closer and it has made us realise what is important to us. I gave up work and despite a big gaping hole in our finances I dont regret a minute of giving it all up. I love spending every waking moment with Grah and I only wished I had done it sooner. We brought a motorhome earlier this year and we are probably at our happiest when we are away in it. It has given us a new lease of life… we love it!

Hope all continues to go well, Eve

Pauline x

[paulineParticipant]

Hi Chelle

Hopefully it is just a blip. I know my hubby's bloods are rarely what we expect them. There was one occasion when he was told he needed a platelet and blood transfusion only to be told a few hours later that he didn't!

Often consultants only tell you how much they think you need to hear so my advice would be to ask what options they are considering. There are times when you think there is no hope but the consultants then tell you what they are planning and you then realise there are more avenues to explore than what you first thought.

I hope he is soon on the mend and feeling much better and that you are able to keep strong and postive

Pauline

[paulineParticipant]

Hi Chelle

It amazes me with all you have on your plate that you found time to reply to my post… thank you. I do hope your hubby's treatment is soon back on track and that they can get him back into remission. I think you are right… do we ever know how to act.. probably not. I have shared my thoughts with hubby today but he is just getting on with life now as if nothing has happened and I cant and indeed wont grumble about that. We have lost 5 family/friends to cancer this year and my dad is still battling with it but when we see news about new developments to help myeloma suffers it gives us encouragement and hope.
We do not have any support groups near to where we live so when I have more energy it may be worth looking into how to start one should people in the area want one.

You really do have your work cut out and I do hope things start to improve. It is stories like yours which put mine into context; I actually have very little to moan about.

Wishing you all the best

Pauline

[paulineParticipant]

Thanks Dai. That makes complete sense. I did let him know that it is the only way I can deal with it and think he understood. Reading Eve's last post makes me realise how lucky we are… I do hope the treatment works Eve and I am sure everyone on here is rooting for your hubby.

Everybody has been so kind. You are truly wonderful people and I thank you from the bottom of my heart.

Pauline

[paulineParticipant]

Thanks all for your advice which is most welcome. Insomnia also plays a big part which is probably why it is sometimes difficult to keep things in perspective! I will take all your advice on board. Hubby is now saying everything is fine and we should now forget what happened on Monday…. mm typical eh! This really is a roller coaster illness but thankfully the blood pressure is still in check and the wine certainly helps!

Thanks again for all your kind wishes and the advice given. I know everything will be ok so it is just a matter of keeping strong… and that I can do.

Pauline

[paulineParticipant]

Thanks again Jean. It is nice to know there are people out there who understand.

Pauline

[paulineParticipant]

Thank you both for your replies. I feel very alone this week so it nice to know that actually I am not.

You both make very valid points and I have tried as tactfully as I can to suggest that my hubby phones the helpline number to discuss his feelings with someone who is outside of the situation and can offer the best advice. I am hoping he will take this on board but judging by his reaction I very much doubt it.

I cant seem to say or do anything right at the moment but looking at Jean's reply there is hope!

Eve I think you are right about the depression but he says he doesn't want to take antidepressants. I think he needs to talk to someone so perhaps I will be able to persuade him to do so…. one step at a time eh!

Thanks again

Pauline

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