Hi Calray,

I too had problems with ‘useless’legs but I’d like to give a bit of history first.

My diagnosis of myeloma occurred in a very roundabout way. I’d suffered increasingly severe migraines and noticed that I had difficulty raising my right leg so that I’d have to pull it up with my arms in order to cross a stile. It was discovered that my…[Read more]

Hi Susie,

I too suffered from cramps. I mentioned it to my consultant who prescribed quinine tablets. Alternatively, it was suggested that if I didn’t want to take another medication I could drink a lot of tonic water as it too contains quinine – but she couln’t quantify what a lot was ….just to drink like a fish. I took the tablets and didn’t…[Read more]

Hello Eve,
Sorry to hear about Slim’s predicament.
I’ve been trying to recollect my treatment, it was some time ago now. I believe I was diagnosed approx June 2011 and went straight to RCD on the myeloma X1 trial. After quite a few major hiccups,and receiving six doses of Velcade to get my light chain readings down, I proceeded to my SCT. I don’t…[Read more]

No suggestions concerning the appetite..mine came back fairly quickly and I've regained nearly all the weight that I lost. However, regarding the lack of saliva when I was in hospital I was given a spray to replace the missing saliva. I only needed it temporarily but maybe you could get a prescription for something similar from your doctor. I most…[Read more]

My platelets went down to 2……….. but I,ve just read that I,,ve been, beaten, by Sue whose levels fell to just 1!
All the best
Peggy

I too have light chaiins…….in fact aI thhink that there are a fair number of us on this forum. I TOO had RCD but am onnly just recovering from my SCT which I had over Xmas ….truth be told I,m still feeling pretty rough. So neither have i reached the point of randomizattion either.

All the best meanwhile,…[Read more]

brilliant
result
…well doone
peggy

(Hi Lizzy,

I too was one of those unfortunate ones to have an allergic reaction to Allopurinol. The hospital wasn,t at first sure whether it was the Allopurinol or the Revlimid but I too took the risk of taking Revlimid again and luckily i had no further reactions. But I was hospitalised for over three weeks, had severe swelling of face body…[Read more]

Hi all,

Yes, I,ve got the answer. Dai, ther,s to be no chemo-priming. But I have got the GCsF injections. I had thought that I would have more hospital appointments and more tests but I was simply handed eight syringes to inject myself with starting on the day four days before the stem cell collection. That,s no problem but is that…[Read more]

Thanks Eve And Helen for your responses…

Roll on tomorrow when I will find out what,s happening. It,s school holidays this week so we,re going away for a few days and the following week I have a few non-alterable (non-medical ) appointments so no time to fit in any further medical tests… Tomorrow will reveal all.

Peggy

I'm just started cycle 5 of VCD. I noticed my hair start thinning on cycle 2. By cycle 3 it was coming out in handfuls, usually a day or two after taking the cyclophosphamide component of the VCD. On Tuesday I took my last cyclophos and guess what is happening this morning?

I used to have longish hair but now it's dead short especially at the…[Read more]

Hi Vicki, I hope all goes well for Colin over the next few weeks. I'm still keeping my fingers crossed that I'll be
following the same path in a few weeks time….. (last time I saw my consultant a few weeks ago I was prepared to be told that I could go in for the sct and then being on the Myeloma X1 trial I was 'randomised' to…[Read more]

Ah ,Kinder Scout Downfall. I have memories of climbing up the frozen waterfall at full moon with ice axe and crampons….my only true ice climb, Happy days,

Peggy

Hi all,

I too had that dreaded allopurinol reaction………. started off with a rash and then my skin started peeling off all over. Unfortunately I was given an antibiotic which itseemsthat I was also allergic to and ended up in hospital for over three weeks. So no allopurinol, no meropenem, no erythromycin, no trimethoprim and no…[Read more]