[peonyParticipant]

Hi all,

Just a quick update on what’s been happening. I’ve eventually had my mri and I had appointment for 12th of June to get results, only to receive a letter today to say it’s been cancelled until the 19th. So im thinking I’ve not relapsed as they would have got me in sooner. Has this ever happened to anyone else? I’m finding the morphine is keeping the pain under control and I’m keeping positive 👍

Sheena

[peonyParticipant]

Hi,

just an update on what’s been happening with me. I eventually had my appointment with haematologist today and I found out that when I was diagnosed in 2000 my bloods were clear it was only when I had mri that it showed something wrong. So I’m now waiting for an mri and it should be within the next two weeks. He has said my pain could just be wear and tear with all the treatment I’ve had. Fingers crossed that’s all it is.

Sheena

[peonyParticipant]

Hi Mike,

I know what you mean about the sleepless nights before a checkup it’s always a worry. I hope all goes well for you on Wednesday.

Good luck

Sheena.

 

[peonyParticipant]

Hi,

Just waiting on an appointment from hospital for an MRI. I’m going through all the emotions I went through last time, thinking there’s something wrong to its all in my imagination. I can get days when I have little pain, they are the days when I think its not back, to terrible pain in my lower back when I walk and its those days I find very difficult but I’m trying to stay positive for my family.

Sheena

[peonyParticipant]

Hi all,

Not long back from gp and after a bit of an argument I’m now being referred to hospital and hopefully mri. My gp seemed to think I had sciatica but I’m so glad Hannah was there to tell him straight that there was so symptoms for that. He then started to read my notes and he apologised.

Thank you for getting in touch and I’ll keep you updated on how I get on.

Sheena

[peonyParticipant]

Hi Mike

We are going to the doctors on Friday afternoon. As doctor won’t listen to me Hannah is determined to get him to listen to her and get me sent for mri. She said if an animal comes in with pain and bloods are clear the next step Is imaging to rule things out.

I’ll let you know how we get on

sheena

[peonyParticipant]

Hi mike,

Ive had my bloods done at gp surgery and the nurse practitioner has told me they are fine and to come back in a few weeks if the pain is still there. Since my brilliant doctor retired from the hospital I was told just to go to gp if I had problems and to get my bloods done. They’re not keen to refer me to  the hospital and they won’t send me for mri. My daughter is a vet so she’s coming to gp with me to see if she can get through to them. I’ve been very lucky and been pain free all these years so I just want find out what’s going on and mri would put my mind at rest. No I don’t see any other myeloma specialists.

Thanks for getting in touch

sheena

 

[peonyParticipant]

Hi nick,

I did phone my old doctors receptionist at the hospital but she told me it’s all changed since he retired and I have to go through my gp. I’ll make an appointment and go and see him.

Thanks for your reply

[peonyParticipant]

Hi all,

I was diagnosed in 2000 at the age of 39. After chemo,radio and sct in 2001 and a few years of pamidronate I have been on no medication and been reasonably healthy until about 5 months ago. Up until three years ago I was getting my bloods checked every three months by my amazing doctor at the hospital but when he retired I was told to get them done by my GP every year. It took me 2years before my diagnosis to convince GP something was wrong so as you can imagine I’ve  no faith in GP. My bloods were done in November when I started getting lower back pain again but they came back clear. Now the pain has started to wake me up through the night. The pain is not constant but getting it more often and now getting severe pain in my shoulder. Has anyone else had these problems?

Regards Sheena

 

[peonyParticipant]

Hi dean,

I had my Sct some years ago, I was on a ward to start with then on the 5th day I was put in my own room, this was to help stop infections. I stayed in my own room until I was allowed home. I had my Sct at the RVI in Newcastle. Hope this helps and all goes well for you.

 

[peonyParticipant]

Hi Dean

 

thanks for replying. Just had the one SCT. I was told at the time that it would return at some point. Managed to get an appointment with gp, just waiting on blood results. Keeping positive!

 

Thanks

[Author]

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