shirley replied to the topic Some good news at long last in the forum General 14 years, 1 month ago
Thanx everyone,Min last time i was in the big market i had such a blast,but because the damage the myeloma has done to my back means my wild dancing days are over,play safely now i love eating out,so looking forward to going up. And hiya Myra seems ages since i last seen you,thankyou for your kind visits when i was in hospital it really meant…[Read more]
shirley replied to the topic Some good news at long last in the forum General 14 years, 1 month ago
Hi David,thankyou for your kind words and everyone else too,. David you are not going to get rid of me this easy,its down to you and my family that i got through this,i'm beginning a new chapter in my life,i'm gettng my puppy in a few months times,going up north for a few days,don't feel ready to go abroad just yet,so we are visiting family and…[Read more]
shirley replied to the topic Ah Well! in the forum General 14 years, 1 month ago
Dear Dai,so very sorry to hear your bad news,you and your wife must be devastated, i do hope they can find a cure to help prolong life alot longer,stay strong Dai and take care Shirley x x x x
shirley started the topic Some good news at long last. in the forum General 14 years, 1 month ago
Hi everybody,i'd like to share my fantastic news,i went to the myeloma clinic today and got told my paraproteins were undetected,my consualtant high 5'd me and said thanx to my lovely sister who donated her cells so that i could have an allo graph that i was in remission,i sat there totally gob smacked,still can't believe it me in remission,my…[Read more]
shirley replied to the topic Just a query on Allo transplants in the forum General 14 years, 1 month ago
Did someone mention my name ha ha, hi Sandra,my name is Shirley,i had an allo transplant back in December,i'm 45,43 when i got diagnosed with mm,i had the allo transplant on reccomendation of my consualtant. The healing process has been slow and very tireing,you find you sleep alot,but as the saying goes while your sleeping your healing,i have had…[Read more]
shirley replied to the topic SCT What to Pack? in the forum General 14 years, 1 month ago
Hi Sarah,when i went in for my sct back in december,it was my second time,so knew what to pack,i made sure i had plenty of night wear,plenty of wipes and moisture toilet roll,hospital food didn't go down well,so i took in cuppa soups,plenty of moisture cream as your skin tends to dry out,i took in loads of reading material,hope this can be of some…[Read more]
shirley replied to the topic Big hello one and all in the forum General 14 years, 1 month ago
Hi Roz,lovely to see you on here,i haven't been on here much,to be honest i've been feeling to tired and quite low,my emotions are all over the place,but picking up again.Glad your doing well yourself,time is great healer and sounds like your doing just fine, x x take care Shirley xx
shirley replied to the topic 10 week check up since STC in the forum General 14 years, 2 months ago
Hi David,just been reading your post,and well done to you on your progress to getting better, thats really good news,i'm not far behind you on having the stem cell transplant,i had mine on the 20th December,and like you,been told i'm doing really well,bloods are great,paraprotein remain unmoved but they are very low but they don't seem worried.…[Read more]
shirley replied to the topic just a catch up with everyone in the forum General 14 years, 2 months ago
Hi everyone,thanx for replies,i had my bloods done again today,all results are coming back fantastic,i did wake up this morning feeling quite sick and very weepy,but ok again now. David you sound just like me,if i saw that lonely little puppy i would've fallen for him,my problem at the moment is that i would love a white westie,but i'm having…[Read more]
shirley started the topic just a catch up with everyone. in the forum General 14 years, 2 months ago
Hi Everyone,hope all is well,sorry i've been a little quiet,just been a little tired but ok. Well i'm on day 56 since i had my allo transplant and please to say all is going really,still having a few problems with my cyclsporin levels being a bit high,and my magnesium levels low,and now i'm a little anemic,but now with the right combination of…[Read more]
shirley replied to the topic I'M HOME in the forum Treatment 14 years, 3 months ago
Hi Myra hope all goes well on the 7th for you,bet its been great having a break from the hospital,i'm still up there every other day,tryin to get my ciclosporin and magnesium levels balancing just so,heamglobins have been fine as everything else,just wish i could shake this tiredness off,i sleep anywhere ha ha,anyway you enjoy you freedom for a…[Read more]
shirley replied to the topic I'M HOME in the forum Treatment 14 years, 3 months ago
Oh no,hope your gonna be ok,the only trouble they are having with me at the monent is getting my cyclesporin levels right,i've to stop again tonite and tomorrow morning and start again tomorrow nite. Everything else is doing well,just the tiredness,i can fall asleep anywhere my tushi is parked ha ha ha. Your right about hospital visits its such…[Read more]
shirley replied to the topic Yesterday Michaels funeral in the forum General 14 years, 3 months ago
Big well done you,Micheal would've been so proud of you as well as your daughters and grandaughter,. Your gonna have days when you feel like poop and if you ever want to scream,rant and rage and have a good old weep,come on here,never feel your alone ok,you take care, Shirls x x x
shirley replied to the topic I'M HOME in the forum Treatment 14 years, 3 months ago
Hi Myra,how you doing,its lovely being home,nothing like your own bed and pillows and a soak in the bath to make you feel human again,i'm loving it,i'm back up for checkups on Monday,everything is heading in the right way so i'm pleased with that,. I do hope your well see you soon luv Shirls x x x
shirley replied to the topic I'M HOME in the forum Treatment 14 years, 3 months ago
Hi Sharon,how you doing,hope you are well. I'm preparing for whatever hits me, been made aware of what to expect,its the trips back to the hospital every other day thats tiring me out at the moment,we were up there yesterday,nearly 6hrs we sat waiting for my magnesium levels to come back,our hospital is so warm it really does tire you.They found…[Read more]
shirley started the topic I'M HOME. in the forum Treatment 14 years, 4 months ago
Hi everybody, well as the headlines say i'm home,and boy it feels fab. I got home on Monday,but i'm still extremely tired,going to take awhile for me to start feeling better,but i'm slowly getting there,i'd like to thank everyone for their support,and a big big thankyou to my sister Trish for everything without her i would never have had the sct,.…[Read more]
shirley started the topic update on allo sct. in the forum Treatment 14 years, 4 months ago
Hi everybody,as promised another update,everything is going really well with the allo sct,its day 13,not got a sore mouth,temperture is great,platelets were a little low last week but they are rising again,hopefully if this continues i mite be allowed home not this weekend but maybe the following. Sadly though i lost all my lucious curly hair…[Read more]
shirley replied to the topic Michael passed away at 1.30am today in the forum General 14 years, 4 months ago
Oh Roz,i'm so very sorry to hear about Micheal,my sincere condolences to you and Andrea, remember all the good and happy times Roz,you take care best wishes Shirls x x x x x
shirley replied to the topic ALLO TRANSPLANT WENT REALLY WELL in the forum Treatment 14 years, 4 months ago
Hi thanks everybody for your lovely messages,well i'm on day 5,all is going as it should,my nutriphills are dropping,feeling a bit weepy today,xmas day was different,but very nice,managed to eat xmas dinner. Sharon your right about the food,everything is so bland,white and boring,well my lunch has just been delivered,if i'm up to it i'll write…[Read more]
shirley started the topic ALLO TRANSPLANT WENT REALLY WELL. in the forum Treatment 14 years, 4 months ago
Hi everybody,well here i am in hotel birchward,i came in on Sunday and got settled in,had my melphlan on monday,and transplant took 2 days,on tuesday they didn't quite collect enough cells from my sister,so they gave me what they got,and had another go yesterday,at the moment i'm feeling ok although my appetite isn't very good,so they sending a…[Read more]