Hi,
My husband is going through his 1st relapse treatment with Carfilzomib/Lenalidomide/Dexamethasone and was wondering if someone can clarify a few points:
1. His Consultant has told him that Lenalidomide maintenance is not approved under NHS after stem cell transplant after 1st relapse, but only after 1st stem cell transplant. Is anyone currently going through this maintenance treatment after 1st relapse and if so, has it worked?
2. My husband had a 3 year partial remission after 1st stem cell and was wondering if it is possible to have a full remission after 2nd stem cell as his consultant has told him that the 2nd remission is usually for a shorter period compared to 1st remission. Initially my husband was thinking of staying on the 3 drug treatment rather than go through 2nd stem cell, but would welcome thoughts of someone who has stayed on the drug treatment and what has been their response.
3. The consultant has also told him that it is not advisable to go for more than 2 stem cell transplants. Does it mean that my husband will have to rely on new treatments which are all drug combinations and they more or less need to be taken regularly.
