[raptorParticipant]

HI Tom,
That’s quite a journey that you have been on.
My 51 year old wife was diagnosed with myeloma in 2018, but had severed with back ache for many years prior and was misdiagnosed for 2 years. After 4 reg lines of chemo she has been told to get her affairs in order and suddenly and dramatically she is in immense pain whilst moving. We were hoping for Car-T treatment but we have been told this is not now coming to the UK. There are a couple of other trials and drugs that she might be considered for and we are ever hopeful.
I’m sure they are so very close to finding a cure for this or at least making it manageable in the long term.

xxx

[raptorParticipant]

Thank you very much for your kind words and good advice

[raptorParticipant]

Hi, this maybe too late but just in case. My wife was diagnosed with Myeloma at 46 and had some 6 fractures in her back ( this was after going to the doctor / hospital 6 times over 8 months complaining of severe back ache) You underwent 2 ‘cement’ back operations as only 2 fractures can be done at a time this was a day surgery in St Thomas Tooting. These proved very beneficial but as stated I cannot state re the posture as this was not an issue.

[Author]

Posts