rayroth changed their profile picture 9 years, 8 months ago
rayroth replied to the topic AL amyloidosis….. Cardiac Amyloidosis in the forum AL amyloidosis 9 years, 8 months ago
Hi
Thanks for sharing. I now have an appointment for a heart biopsy on 21st August. Unlike others I have not had a major event and have come to this point after significant heart wall thickening and a history of breathlessness. It seems that it is heart only. I really appreciate the existence of this forum and will post from time to time. Go…[Read more]
rayroth replied to the topic AL amyloidosis….. Cardiac Amyloidosis in the forum AL amyloidosis 9 years, 8 months ago
I come from “the land down under” and am currently being assessed by the PA Amyloidosis clinic in Brisbane. After months of biopsies etc they are 95% sure I have Al type and it appears to be in the heart only. I am waiting for the cardiologist to get me on to his list for a cardiac biopsy. The processes are exceedingly slow. I am nervous abo…[Read more]
rayroth became a registered member 9 years, 8 months ago