Hi

Thanks for sharing. I now have an appointment for a heart biopsy on 21st August.  Unlike others I have not had a major event and have come to this point after significant heart wall thickening and a history of breathlessness.  It seems that it is heart only. I really appreciate the existence of this forum and will post from time to time. Go…[Read more]

I come from “the land down under” and am currently being assessed by the PA Amyloidosis clinic in Brisbane.  After months of biopsies etc they are 95% sure I have Al type and it appears to be in the heart only.  I am waiting for the cardiologist to get me on to his list for a cardiac biopsy.  The processes are exceedingly slow.  I am nervous abo…[Read more]