I come from “the land down under” and am currently being assessed by the PA Amyloidosis clinic in Brisbane. After months of biopsies etc they are 95% sure I have Al type and it appears to be in the heart only. I am waiting for the cardiologist to get me on to his list for a cardiac biopsy. The processes are exceedingly slow. I am nervous about what the future holds but at 72 I guess I can face the final result but am not looking forward to getting there.
I am pleased to have found this forum and would appreciate any advice you might offer at my stage. I did live in Nottingham for several periods and taught at Nottingham University so I have great affection for your country.
