Its really nice to meet you all just wish it wasn't cause of MM! I will ring on Monday for a MM diary. I am just cross that we haven't been informed in 2009 that there was Bence Jones protein in his urine, at least we would ve expected all the last 2 week's drama with his kidneys. He was so poorly he didn't know what was happening to him, he…[Read more]

Hi Eve,
Thank you for replying :-). According to the consultant at the hospital in Swansea, Cyril has had Bence Jones protein in his urine since 2009 (we were only told last Dec 2011) about it, Somewhere we've haven't been told he had MM in 2009 and he has been left for 2 years without monitoring or treatment :-S He only had Zometa every month…[Read more]

so glad i read your post, I m similar situation, my daughter Tracey is 16, got the pets, business and most importantly Cyril my husband to care for. My parents live sin South Africa and the times I ve tried to speak to my mum we both just got so emotional so know I do the pretend I am ok all the time. But deep inside I am so scared…. A few…[Read more]