[richardlongParticipant]

Richard I have just been started yesterday on PAD from Revlimid as after 5months of treatment, during which time my paratrotein level went up instead of down. Hoping I have better luck with this treatment.
Im grateful at minute that at least they are giving me something. Feel a bit sorry for the consultant when he has to apply for funding for any new treatment at this stage. I'm sure he didnt join the medical profession to deal with finances, but i guess thats just the way it is. Hope you do well on your new treatment

[richardlongParticipant]

Hi dickB,
Thanks for replying. Well take it from me there are definitely more treatments available for you already and my doctors tell me there are currently trials being done in UK for 2 more treatments.
My doctor always says "your're not a statistic, and statistics are only for doctors prescribing treatment".
4years ago i didnt really know what lay ahead but you meet alot of positive people, patients and nurses. But i know although we are all individuals i have spoken to people who are 10years down the line.
So i think you're wife is probably right

[richardlongParticipant]

Hi David,

Thanks for replying. I was on velcade for I think 8 cycles, although some weeks i only got it once instead of twice a week, due to tingling in hands and feet, colds, etc. My paraprotein started to rise after only a month off velcade and I went on revlimid after another 5months. Strangely doctors told me most people manage revlimid quite easily but i had no real problems with velcade compared to revlimid.
I am also back on zometa infusion and having bone pain, although i thought this was side effect of revlimid or maybe my myeloma being active.
Do you think you'll go back for SCT again?, as docs told me you get shorter remission a second time, although some patients have told me they got as long again.

[richardlongParticipant]

Hi, I have had MM since Sept 09, After thalidomide, SCT and Velcade, I am now on 4th cycle of revlimid. This has been my toughest one yet. My bloods are very low and i have back and chest pain. I really feel i have no choice but to struggle on as funding has been supplied for this treatment. I feel knocked back a bit as i sailed through the other medications although i did not get much remission period in between. My revlimid is 25mg a day and has not yet reduced the paraprotein, but other patients have told me it has been the best result yet for them.

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