Wow was strangely comforting reading your’e post i am in the exact same place had sct in march doing ok on maintenance lenalidomide and bcak every 4 weeks for zometa.

Feel a fraud because everyone is more buzzing than me . One thing you said is so true while on chemo something positive is happening and its worth it,your’e building  up to sct,…[Read more]

great news i too spent 15 days in  sct  been home 8 weeks ,promise you appetite will return and your’e sense of taste and smell will return to normal

thanks karen and good luck to you

thanks nice to know I’m not alone,interestingly I had same drug combo as yourself. Good luck with everything.

thankyou jan

thats the kind of encouraging news thats always good to hear ,congrats.

i was on myeloma xi had 4 cycles last year not complete remission but very close, i went to see tranplant co-ordinator last wed and i’ve now got my sct timetable, going friday for high  dose of cyclophosphamide,then following wed for gcsf   injections to mobilise stem c…[Read more]

thats the kind of encouraging news thats always good to hear ,congrats.

<address>i was on myeloma xi had 4 cycles last year not complete remission but very close, i went to see tranplant co-ordinator last wed and i’ve now got my sct timetable, going friday for high  dose of cyclophosphamide,then following wed for gcsf   injections to mobilise s…[Read more]

hi ,im being treated at blackpool victoria  cons-dr grey

on myeloma xi trial just finished 4 cycles  just short of 100%  remission prob 96-97%…

looking at  speaking to transplant coordinator b4 xmas  with transplant prob feb ish

it is hard for everyone but without trying to upset anyone i do think certain opinions should be kept to themselves,i myself have young children who do not know the extent  of my disease at all and the thought of leaving them and my wife fills me with tears every time,i want to see them grow up i want to be a grandfather but i know this might not…[Read more]

just out of curiousity whereabouts are you in uk

i’m being treated at blackpool victoria hospital

and as i’m on the same steroids insomnia is common so dont worry

hi mate i’m 43 diagnosed 2 months ago, i know the feeling ups n downs crying etc… its not easy.

just out of interest you mentioned 20 steroids a day with other tabs and chemo. are you by any chance on myeloma xi trial? thats what i’m on, just had a weeks break (one cycle is mon/tues every week for 3 weeks chemo in hospital) followed by a week…[Read more]

recieved

thank you for  all comments very interesting my nurse at blackpool has told me that they never use anything other than local,but i am going to ask next time

many thanks

U N B E L I E V A B L E   a forum for people suffering with cancer and  some lowlife  mnages somehow to register on here and then try to sell phones/laptops etc…..

i hope there is some kind of moderator who can block  people like this