Hi Ron, I hope that Christine soon gets the treatment balanced. The early days always seem to be the most difficult. We just focused on getting to know as much as possible about treatment and possible outcomes and making sure that we followed the treatment regime as closely as possible. I have followed a lot of stories on this site and found most…[Read more]

Hi all, I am not at all sure about this. I was puzzled at first because my e-mail handler displayed all of the header information but everything that is there points back to this forum apart from the references to opaltelecom.net and smithmicrosystems.com neither of which seem to exist. Andy, if you are there, help please.

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Hi Jean, I nearly answered it. It may still be genuine. As far as I know, the worst that can happen is that whoever sent it now knows you are active at that e-mail address and you may get other apparently unrelated nasties so just be careful and don't open anything from an unknown source. I don't think you should lose sleep. In 10 years of…[Read more]

Hi Bridget, I don't think that you should worry too much. Your will power seems to have joined forces with your sense of humour and together they are a formidable force. I am sure that together they will pull you through anything that the dreaded M can throw up.
It is certainly a great help to the rest of us. Ron.

Hello Dai, I got one too. It certainly seemed to be an odd format and I think you are right to bring it to our attention. Certainly, there are some sad people out there and I should be very surprised if this site did not get their attention. I have always worried about this problem because of the very easy going nature of everyone here. Perhaps…[Read more]

Hi Ron, First, hello and welcome. I guess you are beginning to get the feel of this little community now. Like you, it is my wife Pauline who was diagnosed,out of the blue, nearly 2 years ago just before her 65th birthday. Nothing that you have experienced so far is in any way unusual. Pauline had all of that and more, but she was very unlucky and…[Read more]

Time to start mothering….
Hope it's not too bad.
Ron.

Hi Eva, Agreed on all points. I offered the bits and pieces as discussion points. As I said, we have always trusted aspirin and were aware of its problems with warfarin and clexaine etc. but wondered if there were any problems with using while having nothing more than the bone strengthening drugs. It is encouraging to find that aspirin is being…[Read more]

Hi David, Good news. That has got to be a sign that normality, whatever that is, is returning. We heard that it can come back in a different form but were surprised when Pauline's came back with less grey and nicely wavy. She has had a full head of hair for six months now and only been the the hairdresser once for a cut. She thinks it's great to…[Read more]

Hi Bridget, I dropped onto a report somewhere recently that If Revlimid is supplemented with about 100mg Aspirin daily it can add as much as 25 – 50% to the benefit timespan. I just can't remember where! More to the point of Amelie's topic, I also found a report on the results of a test which showed that paracetamol can impede the body's response…[Read more]

Hi Bridget,
We asked about the pneumonia jab after Pauline's SCT and were surprised to be told that it could be dangerous to have it for a second time. Pauline had it about 3 months before her SCT and they were concerned that it may be partially still effective, even after the transplant. Nothing is straightforward with this damned disease is…[Read more]

Hi Amelie, Great news about the remission and long may it last. Pauline had her SCT in January and got the same news in August so we are about 6 months ahead of you. I think it has to be accepted that the immunity is an ongoing problem and seasonal flu jabs are essential. I believe that, if the blood counts are good then the response to new…[Read more]

Hi Amelie,

Anything that helps to focus attention on the need for early diagnosis of this horrible disease has go to be good and I hope your efforts are well received. Like Gaye, my wife Pauline was diagnosed after a blood test looking for diabetes. I think that anemia is probably the most common early test indicator coupled with the usual…[Read more]

H David,
It sounds like you have it made in there. it's got to be a lot better than being out and about at the moment. All being well you should be well on the way back to normal in the spring. Pauline had hers in late January and was just picking up nicely for the late spring and hasn't looked back since so I hope it all continues to go well for…[Read more]