[rosemaryParticipant]

Hi Pat,

I hope you don’t mind me butting into this –  I was diagnosed in November last year with amyloidosis in the kidneys and multiple myeloma.  I have been wondering how you are as you have not been on the forum lately.  I had CVD the same as you and may just have to do the 6 cycles (finishing today) depending if the FLC numbers stay down.  I will be back at the NAC at the end of this month.  Still have loads of protein in the urine though so just waiting to see what happens.  I must say I really did enjoy reading your posts as you have a great sense of humour and positive attitude.

I hope all is well with you.

Best Wishes

Rosemary

[rosemaryParticipant]

Hi Linda

I was diagnosed with amyloidosis (kidney) and multiple myeloma in November last year.  I started chemo in January on CVD for 8 cycles.  I am on 3 week cycles (two weeks on and a week off) so hope to be finished at the end of June.  I have been quite lucky and have not had too many side effects and I am showing improvement.

It is very easy to read a lot of depressing information on the internet and I have found it best to stick to the Myeloma UK site and The National Amyloidosis Centre website where there is a lot of positive information.  Also to watch the lectures on Myeloma UK which really give hope for the future.  The NAC is a great help with a lot of support.

Good luck and keep well

Rosemary

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