[rosietheriveterParticipant]

I started Zometa infusions about 20 months ago and a couple of days after the first one I was at a function where alcohol was served. I had what I thought was a normal amount, but after a short while I was suddenly sick and felt totally wiped out. Since then I have avoided alcohol around the time of the infusions and I have not had any side effects.

[rosietheriveterParticipant]

This sounds like an interesting project. Unfortunately I have not logged on for a while and so I have missed the meeting. Are any further meetings scheduled?

[rosietheriveterParticipant]

Good luck Znab. I should be interested to hear how you get on.

[rosietheriveterParticipant]

Hi Mike1. I have only just seen your post of last November and it seems events have rather overtaken it. I was only going to say that I attend the Helen Donald Unit at Watford, currently only for Zometa as I am in remission after 7 cycles of VCD. The only problem I have had there personally is that there is always a lot of waiting around. I was often there for 4-5 hours for an injection which takes 10 seconds. I wish you well with your treatment at UCH.

[rosietheriveterParticipant]

A postscript to my previous post: I haven’t got accurate detailed data, but it seems that the Health Spark curcumin C3 complex that I got from H&B works better then the stuff I bought online.

[rosietheriveterParticipant]

Hi Znab

After one line of treatment I was told I was in remission in January although my pps were 7.7. They had been going down very slowly with the treatmenet (VCD) – about 0.2 / 0.4 per month. After two months without treatment they had gone up by 4.1 to 11.8. That was when I started taking curcumin, in March. My consultant said it would do no harm but he thought it would do no good. First I got Health Spark Curcumin C3 Complex 60 Capsules from Holland and Barrett. I have finished these and then got Super Curcumin from Super Botanic, which seemed to be a bit cheaper. In the two months March – May my pps only went up 0.6, which seems to be a great improvement. I have got some hypercalcaemia now though and light chains; this may well be just coincidence.

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