Hi Znab,
The curcumin used by Dienneke Ferguson, whose response was written up in the British Medical Journal (A. Zaidi 2017) was Drs Best c3 complex with bioperine (black pepper, which aids absorption). The company make 500mg and 1000mg doses. Dienneke used 8g daily, so used the 1000mg dose.
Dienneke died in about 2020, but not from myeloma despite her being told that she had run out of treatment options about 10 years earlier.
She also used hyperbaric oxygen treatment which may have had an effect on her myeloma too.
Dienneke followed a long term (18 year) Smoldering Myeloma patient who has a health blog called Margaret’s Corner that may be worth reading, either Facebook, or just search “Margaret’s Corner”.
I attended a zoom myeloma patient support group last week which had Dr Urvi Shah speaking. She is a US myeloma specialist doing research into diet. Although she advised against the use of most supplements, she said there is some evidence curcumin can help (& vitamin D & vitamin B12).
I’ve been using Dr Best curcumin, with my consultant’s knowledge, for 5 years alongside conventional induction then maintenance treatments. I started using curcumin before starting induction treatment. Looking back at my results I see that my pps had been rapidly increasing over a period of 4 months while I was being diagnosed. I had an initial dramatic drop of 30% after starting curcumin, then the pps stabilised. However I felt too concerned about potential bone damage to risk continuing to watch & wait.
Curcumin seems to be something some myeloma patients benefit from, but probably not all.
The Drs Best is very expensive in UK, but if you know anyone visiting from USA it can be bought there for half the price and can be legally brought into this country.
