Hello Jean
I didnt know what the difference was so i looked it up only !/2% of people get this and it sounds very strange that it has changed from one to the other perhaps he had this all the time
Love Jo x

Hello Kieth

When I was on Thalidomide it was awful I took lactolose that worked for me you can get it over the counter from boots Good luck:-P
Love Jo x

Thanks Tom
A big (((hug)) to yoy too;-)
Love Jox

HeIlo Dia
I am not doing to badly but have a consultant app on monday so we will see I didnt really want to post after hearing about Bridget because her death upset me so much I had been in touch with her on E mail these last couple of years and felt I knew her quite well but she would not want us to give up so I will carry one:-(
Love Jo x

Hello Dia
This is good news for me if this drug is in the velcade family it will be prccessed through the liver which is good for me as my kidneys will not take all kinds of other drugs:-)
Hope you are feeling well;-)
Love Jo

Hello Mavis
thats wonderful news see God was listening i did'nt have any withdrawals from CDT just a bit from the DEX lets hope your mobility eases and you can get around much better
God bless Jo x

Yippee
Tom roll out the vodka what wonderful news
Big (((Hugs)):-) 😀 😎 😉
Love Jo x

Hello Mari

good luck to you and stephen I am sure it will ago ok so glad stephen is very positive I am sure it helps
Love Jo x

Hello Jean

Have they checked Franks sugars large amounts of DEX can temporary rise the levels to high sugars are one of the side effects of thrush I had to have triple my dose of insulin while taking dex to combat it
Love Jo x

Hi Keith

glad you had a great holiday there will be many more I am sure fingers crossed for the new treatment hope you dont stuggle too much with the DEX
lOVE jO X

Hello Jean

How are you and Frank coping is it getting any better for him and you has it stopped raining in NI we have a fine day today for a change went for a little walk today got the kidney clinic tomorrow always a worry. Hoping to go to the IOW in a couple of weeks if all ok.
Love Jo x

Dear Judd
Welcome to this site
what an horrendous time you had I know the chemo will be difficult but neccessary can they do anything for your back I think when you feel a bit better there are certain operations you can have thank the Lord someone recognised your symptoms good luck with your treatment
Regards Jo x

Great news Avis

Well done for getting that done – the charity is amazing so I think they deserve every penny we can raise for them!

Take care
Debsx

Hi there

I'm not surprised that you're nervous, but hopefully we can all help to relieve that a bit!

Firstly, my consultant said that the % is more like under 1% and that is the case with most hospital procedures that are of significance.

I had my SCT a year ago, and Tom is right, it isn't nice,but you get over it…it's a bit like…[Read more]

hello Scott

hope you had a great holiday in Spain I am sorry that your light chains have gone up fingers crossed its only a blip
keep well
Love Jo x

Hi Eve
I hope slim is ok apart from the platelets I dont know about them but you could phone ellen I am sure she will know the answer
Regards to Slim
Love Jo xx

Siobhan

I am so sad about Bridget she was a great friend to me so brave and kind
one of the best may she rest in peace with the angels
Love Jo x

hello Roy
Ann sounds as if she is a very determined lady and very brave you must be so very proud of her
Jo x

Hello Dear Tom
what have you been doing I hope the pain in your shoulder has been caused by lifting all those pints or kids you take care and let me know how you get on
Big big hug
Jo

Hello Ian

I am sorry your allo didnt work glad they are letting you go back on velcade as it worked well before good luck with the new treatmenr
lOve Jo x