Hello Jean

what lovely girls you have I have a cheeky monkey of a grandson but have not yet managed to uplaod a piccy hope easter went well for you it was wet and freezing cold here:-(
Love Jo x

Di
I always enjoy the closeness of friends:-) I really appreciate this site I dont always have loads to say but I have felt so much care from strangers
I have needed the support on many times so I feel I will always add my thoughts if they can help others when I was diagnose I nowhere else to turn to it saved my sanity 😉
Love Jo

Hi Kieth
lets hope its not 6 years and they accelerate the trail so many new things
coming on stream much more hope theses days I hope you are still well after your SCT
regards jO X

Well Dia
Its a good job you have nurse Janet at your side I bet she knows as much about these drugs side effects and what effect have on you as anybody does
Stay well and good luck for tomorrow
Love Jox

Hi Dai,
I don't tend to post regularly anymore because I find it all a bit tough at times.
Post transplant, I have been pretty much constantly ill with coughs, colds and illnesses. That alongside trying to run my family in some sort of normality,and organise my ball just takes it out of me, so I suppose that is perhaps the same for others.
I…[Read more]

Hello Mavis

so glad things are going in the right direction at least they seem to have got on top of your pain the wheel chair might well be a temporary measure at least I hope so My prayers will be with you this Easter time
A BIG (((HUG)) From Jox

Hello Dia
I will be keeping my fingers crossed for you on tuesday I really hope the pain in your shoulder is not MM related it sounds good that paracetamols help as they are not the best for severe pain lots of luck
Love Jo x

Hi Ozzey

I was type 2 diabetic before I was diagnosed with MM I was very well managed but since all the steriods during CDT and now a small dose because of the renal failure they have put me on insulin as steriods raise the sugar levels so much this could be what has happened in your case I'm manageing quite well but its not ideal but all these…[Read more]

hi Kay

Wow you are a wonder woman I am so glad you can go to work it must be a real milestone for you Steriod are good for pain killing but can play havac with you in other ways I havnt had joint pain but take predisilone for my chronic renal trouble I am diabetic and it puts my sugars up a lot which is a real problem but its better than DEX. I…[Read more]

HI Neelie
What terrible time your dad has had but it does not surprise me I went to my docter because I could barely stand up and could not breath she said just a virus take two paracetamols my husband took me into A&E NEXT MORNING WITH DOUBLE PNUEMONIA AND KIDNEY FAILURE I nearly died while in hospital I had 7 units of blood and after test…[Read more]

Bumping this post up again so that people know how to get hold of Scotty if they want to join the extra Under 50 site….as she says, the language is a bit riper but it is another type of support. x

Hi there.
Just couldn't help but come in on the alcohol question 🙂
My consultant said when I was on revlimid that I could have a couple of drinks but that I probably wouldn't want to!! Boy was she right…couldn't even face champagne! Then when the revlimid stopped working (my pp had come down from over 50 to 28), I went onto revlimid….I…[Read more]

hi Andy

I am not a big drinker but I drank real ale and red wine in moderation all though my CDT i SEEMED TO BE OK
GO FOR IT;-)
lOVE jO

hi Jean
nice to hear from you so Frank is being a naughty boy again Geoff is the same the worlds worst patient I am ok at the moment fingers crossed last PEP test was fine so another two months now which is a relief the weather here is still sunny but not as warm I really do hope we dont get snow
Hope you had a nice weekend
love Jo x

Dia
she sounds a brilliant daughter I wish her good luck on the day:-)

Love Jo x

Well done Slim
dear Eve
hope the other tests are fine very sensible to get all appoinments on the same day it may be tiring but it will be over in a day
Good luck
Love Jo x

Great news David

you can now relax and enjoy the next three months you are doing so well long may it last:-)
Regards Jo x

Hello Steph and Andy

this is not a place most people think they would have to join but welcome
everyone here is so supportive and helpful there is usually an answer to any questions you might have and Myeloma help line is priceless
Keep well
Regards Jo x

Hi Jean

how are you and Frank is he behaving himself like most men I suspect not
looks like you have had a bit of good weather in NI lets hope it lasts have you booked a get away yet for this year
Love Jo x

Hi Mavis

so sorry you are having such a bad time I managed quite well with cdt and my kidney function improved they thought it was all the extra steriods which helped the kidneys I do hope they can manage your pain when they do that you will be able to think more clearly. There are lots of new treatments down the line I read about something new…[Read more]