Hi Kirsty

Welcome! Not that you want to be here. There are lots of us here to support you….I don't come on too often as I'm just post transplant and need a bit of a break occasionally whilst in remission.

I was 34 when I was diagnosed with smouldering myeloma, and then started treatment in 2010, just over a year after initial diagnosis. I…[Read more]

Wonderful news Gill:-P

I hope you have a marvellous holiday:-)

Love JO

HI CAROL

great news about your SCT i hope all goes well enjoy your break in Spain come back fit and healthy:-)
Love Jo x

Glad to hear that you're getting better…and enjoying the shorter look! I have to say, I was v positive until I went rollerskating with my 7 year old on Friday and one of her friends told her to 'give your dad a drink'…..hmmm, Nick was nowhere to be seen which just meant that he thought I was a bloke! Now, do I take it seriously?!

Thanks so…[Read more]

Hi Eve
glad you managed to get away in the motor home it will have done you some good so Slim is going for the SCT i do hope this will be a success so he can have a good chance of a better life Well one year on and a wedding anniversary which you didnt at times think you would see hope you can go out and celebrate:-)
Regards to Slim
Love Jo x

Hello Dia keep being chirpy:-) 😀 😎

so glad the rev and dex seem to be working perhaps this will be the ones for you:-) so many people for who Velcade didnt work seem to get on well with this regime I do hope your readings stay good and you shoulder stops hurting you are in my prayers
Love Jo x

Ah thanks Helen. I'm sorry that I haven't been on here more but what with the kids, redoing the bedroom and trying to organise the ball, life's been so hectic….and perhaps there has been a small part of me trying not to let myself become too bogged down with having myeloma. Selfish I know.

My hair is staying short for a while….hopefully…[Read more]

HI DAVID
Sorry to hear you have not been well just to say quite a few people I know have had this 24/48 hour bug perhaps thats what you have had
Regards Jo x

Hi Bridget

I'm sorry to have read this….and sorry I haven't been on here for so long to have seen what you are going through. You are always such a strength to everyone, and such an inspiration….it is not fair that you are having to go through this.

I will keep hoping and praying that they come up with a new option for you, or like…[Read more]

Good luck Chris and Lena!

Sounds like you've got an exciting time ahead of you 🙂

Take care
Debs x

Hi Amelie

Sorry to hear about John needing a second SCT but sure it will all be fine!

Just a thought, but what about those Callipo ice pots that are full of lots of little flavoured ice balls? Think it's callipo or calypso or something???? Might be a bit more pleasant?

Debs x

Hi Andy

sorry the meds have not worked for you so far thats a bit od a bummer I have not heard of the regime you are about to start but i wish the the best of luck
Kind regards Jo

hi Chris

glad you are doing well and your PPs are coming down all be it slowly congratulations on your forth coming wedding I know St Audries its a lovely place:-) I hope you have a wonderful day Keep well and strong
Love Jo x

hi Tina

I was told 2/3 ltrs a day the more the better and yes it can include tea squash not much coffee for me as i have damaged kidneys also the odd glass of wine is ok if you have some water along side kidney specialist told me this I prefer red myself!!:-) 😀
Good luck Jo x

Hello Terry and welcome
glad you found us its good to hear what goes on over the pond I read Dr James Berensons reports you seem much further ahead with treament than us
you are so lucky to have been diagnosed before much damage has been done my kidneys have been badly damaged good luck with holding of the progression of MM
Kind regards Jox

Dia
i am so glad you can be positive about the drugs you it might not be so bad to have revlimid treatment I know a lady in my support group who has had revlimid for nearly four years on a low dose now tablets every other day and no steriods at the moment thalidomide and velcade were not any good for her she says that there have not really been…[Read more]

great news Eve

you have had such a struggle so it looks as if there is a bit of blue sky on the horizon I hope the tests prove to be good so that every thing is go for the SCT good luck and kind regards to Slim
Love Jo x

Hello Andy
welcome to this site you will find so much help and encouragement from so many people Myeloma uk is so good and the help line is a god send so many questions that need answers I hope they can sort out your back and give you sme relief from pain GOOD LUCK with your MM journey
Love Jo x

Hello Jean

how is Frank ok did it turn out to be shinglesafter all how are your nerves coping its sunny here today whats it like in Belfast
Love Jo x