Sounds a greaT trip David

its a wonder you had the energy to complete it time for a rest now how is the velcade going well i hope:-)
Love Jo x

hi Sarah

sorry they could not get enough of those little devils so better luck next time. gave up on my hair and had it all cut off so now its just wash and go my grandson said the other day when looking at photo's i like that one you had hair then gave me a big kiss so kids are cool:-P if they love you is doesnt matter
Love Jo x

Hi SCOTT

Dont get down hearted it seems like they are not giving up on you and your body could probably do with a rest let us know how you are getting on keep in touch:-P
Love JO X

Well Dia

I think this is good news if anything it will buy you a bit of time i am glad your nuets are good and the purdah can end I have the velcade subcut once a week much less side effects PN etc after my sixth cycle UCH want me
to have velcade once every two weeks stretching it it out to 9 cycles less agressive they say then thalidomide…[Read more]

Dia

I am keeping everything crossed for you I am really glad you are positive and the news about the treatment is sounding better thinking of you
Love Jo x

Hello Mavis

I am on the 5th cycle and after the 6th UCLH want me to go on fortnightly velcade and extend the regime to 9 cycles instead of 8 I hope it works can only give it a go:-Dhope you enjoy your trip to see your daughter
God bless Jo x

Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

Hi Clare

my MM journey was diagnosis in Jan 2009 pneumonia' renal failure and MM had CDT which gave me 3 and a half years remission kidneys still only 20% but hanging on started Velcade at the end of last year hoping to get a good remission again this is very much a personal journy I think at your mums age she needs to take her time and take…[Read more]

Have a good time on tour I hope the weather is kind to you
Regards Jo x

Hi Jean
aVERY HAPPY BIRTHDAY TO FRANK
i am so glad he is doing well what relief after all the worry all daughters dont like shopping I have two and they hate shopping so I have to go with my sister in law shes a shopaholic! by the time i have spent half a day with her it puts me off for weeks!!!! hope you are keeping well
Love Jo x

Hi Jacqui and Geoff

Fingers crossed all goes well good luck
Regards Jo x

hi Scott
well a new journey begins i am keeping my fingers crossed for you that everything goes well you are braver than me I do hope your kidneys come though ok but you have to take the risk as the chemo wasnt working for you
at the end of the day we have to do what it takes:-P
Love Jo x

HI Paul
I am also on the same regime as you no real side effects except my ankles swell a bit just a bit of fluid retention so not so bad hate the dex though
I am diabetic so it really plays my sugars up but i can cope with that
good luck for the rest of your treatment
Regards Jo

Hi Mavis

I agree we have so many things to be grateful for especially the people who create these wonderful drugs that keep us going thank the Lord
Love Jo x

hI Sandie

sorry I cannot help with the Zometa as I dont have it but some people have reported flu like sysmptoms when they first get it but i think they settle down after a while
Love Jox

hi Sandie

I was the same as your mun resistant to the first two antiB'S the good old IV penicillin some times the old drugs are still best how is your mum doing ok now i hope
Regards jO

Hi Mavis

thanks for your kind thoughts I am doing ok now velcade seems ok how are you still in remission I hope
God bless
love Jo x

Hello Terry
go ahead and blub why not we all do because terrible mm dont give up hope loads of new treatments coming on stream my husband is my carer he does get a bit depressed but he will be with me all the way as i am sure your wife will be for you so try and look forward as someone said to me the other day if you are a good poker player you…[Read more]

HI mothias

great news wonderful Uclh hope it goes well for you and you get a long long remission:-)
Regards Jo x