HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon

love jo x

hi David
I am about to start cycle 5 of Velcade I have it once a week with cyclo and dex day one and two so not so bad I also have pamidronate once a month
my PP are now down to 4 so all good except the blip with a dose of pnuemonia been ok in the main
Keep well
Love Jo x

good news Andy and steph

lets hope this is the start for you so you achieve an SCT GOOD LUCK
fOM jO X

Hi Tom

I didnt give it to you honest!! I had a temp of 39 when Geoff phoned the
Hospital doesnt it make you feel rotten I hope you will be better soon penicillin soon put me right they said in the hospital they have had so many chest infections that turned into pnuemonia so you be CAREFUL DONT WANT YOU TO GET GET ANY WORSE:-(
lots of love…[Read more]

Hello Vicki and Colin

thanks for your kind thoughts I am on the mend now
Love Jo x

Hello Jane

thank you for your kind thoughts
Love Jo x

Hi Scott

thanks for you kind thoughts I am ok now but the kidneys didnt like the Anti B;s I think they are settling down now sorry about the bendamustamine
Have thought about CDT AGAIN it worked first time for you it could work again better than knocking your kidneys out with an SCT
hOPE THINGS GO WELL FOR YOU I start Velcade again this…[Read more]

hi Tom

you are not kidding thanks for worring about me a big (((HUG FOR YOU))
from one of your flock Baa
Love Jo x

Hi Eve
Could you try and get him refered to The new McMillan cancer centre at Uch
its state of the art I have recommnded Dia trys as his hospital seem to be mucking him about I suppose you would have to go through McMILLAN BUT ITS WORTH A TRY
lOVE jO X

Hell Dia

thanks for your kind thoughts i have been worried about you and your treatment I do hope they came up with something for you or else you will have to try another hospital can you get down to London I go to the UCH once every three months they run a state of the art cancer unit funded by McMillan I wonder if you spoke to them you could…[Read more]

Hi Helen
I am back up and well not running but getting there once they used penicillin which fortunately I can take it soon cleared up I am starting Velcade again this week as the bloods are ok lets hope this was just a blip as you know I havent shut my self away I cannot bear it so there is always a bit of a risk but i have to live my life the…[Read more]

Hi Pat
yes its does frighten you especially when its difficult to breath lets hope this next round of treatment puts you right so you can get off to Canada and hug that grandaughter Geoff took me to Dorset for the weekend it was a bit wet but a nice break
Take care Love Jo x

Thanks Maureen for your kind wishes
Love Jo x

Hi Eve AVOIDED THE SWORD THIS TIME!
Glad Slim is doing ok Tom and Jean posted on face book and my daughter answered them as my husbands does not do forums i dont know about slim but Geoff is not keen any way starting velcade again on wed:-P
Take care
love Jo x

We used World First….no health issues to claim for thank god, but we did have a broken camera which they paid for no problems.
Debs

Thanks Babs and Helen

Babs, I am just not sure whether it is just the revlimid because of the fact I've been on it so long without any side effects. Helen, I think you might be right about slap cheek….sort of didn't want to face into it. I'll see if I'm the same tomorrow and perhaps get a GP appointment if so. I've now scared myself reading…[Read more]

Great news Jean….really pleased to hear that it is all going so well….hope Frank is chuffed too 🙂

Deb x

Hi Michelle
I suppose it could be linked. My transplant has meant I've definitely gone through an early menopause with hot flushes and all that but I suppose this could be a new and different aspect to it. It's just come very much out of the blue!
Thanks for the thought though…may kick me into action re going to speak to my GP about it all.…[Read more]