Hi Rebecca.

I'm 38 and was diagnosed at 35 but haven't heard that one before. I think that it is individual and is probably more to do with your genes than your age as to what impact it has on your body. But I don't know for definite. Have you tried asking the Myeloma Infoline?

I'm not sure if you're asking for you or someone else, or…[Read more]

Just to say that I had my zometa last time over 30 minutes and it made the side effects much better than when I had it over 15 minutes. (Previously I'd had no problems with it).

I've been on zometa for about 3 years now (although I came off it for my transplant in 2011 – blimey it doesn't feel that long ago!), 18 months since transplant. I…[Read more]

Oh Jean
I'm a rubbish friend! I didn't even realise that Frank had gone in as I've hardly looked at the site recently.
It sounds like he's on his way up though and you'll be surprised how it will change now….probably not too long before he'll reach that magic number.
How are you doing with it all? I always felt for Nick….he'd travel 3…[Read more]

Haha David,
I'm catching up on the site a bit late but this made me smile….and I needed that so thank you 🙂

Debs

Hi Dai

I'm going through the same feelings at the moment although I'm being far less careful than you, presuming that I'll be ok :-/ and hoping for the best!

I'm on maintenance at the moment and after nearly 18 months, my neutrophils dropped to 0.56!! They managed to get me up to 0.8 by taking me off revlimid for 2 weeks and giving me 5…[Read more]

Hello Rebecca

I was diagnosed in jan 2009 with real failure and MM my kidneys were at about 20% and still are, managed to avoid dialysis but it always hangs over me I chose not to have an sct as I did not want to risk knocking my kidneys out altogether with the heavy chemo needed for the stem cell I got 3.6months remission from CDT and am now…[Read more]

Brilliant news Jean

keep us posted with Franks progress
Love and a Hug
From Jo x

Hello Mango

arnie has also kicked in to me I also hate the moon face i am on the same regime as you about to start cycle 4 i just hope it works I was diagnosed in jan 2009 but was not well most of the year before
Good luck with the Velcade
Love Jo

Just bumping this one up so that new Under 50's (or thereabouts!) can get access to the Under 50's site – one bonus of the site is that you can rant and rave if you need to without worrying that the people you are ranting and raving about might read your comments – it is a private site so even those innermost feelings that you don't want your…[Read more]

Sneaky or what! so she can still surprise you it must be love

Love Jo

Hi Ozzy

thats really good news I am on velcade at the moment i hope i get the same effect i have just had 3 cycles just about to start the fourth
good luck for the rest of the treatments
Love Jo

hello Jane
welcome I know its not a place you would want to join but you will get so much help and support when I was first diagnosed in jan 2009 I was lost didnt know where to turn for help advice and support until i found this site marvellous:-) I hope it helps you too good luck with the treatment I had CDT and it gave me 3 1/2 years remission…[Read more]

Hi Dia

a winner as always just keep on top of the game
Big Hug;-)
love Jo

Hello Maureen

I hope all goes well and he is home with you soon
Love Jo

Dear Vcki and Colin

Celebrations all the way wonderful news long may it last;-)
Love Jo

Hello Jean and Frank

the long wait over at last will keep in touch thinking about you all the time GOOD LUCK:-)
lOVE jo x

Hi Maureen

I have not had an SCT I was diagnosed in jan 2009 With mm and renal failure kidneys still only working at 20% I chose not to go for SCT as the heavy chemo would have probably knocked my kidneys out completly didnt want to go on dialysis had CDT and got 3yrs 6 months remission have now started on velcade had three rounds of it so far…[Read more]

Great news Dia

just what we all need to hear a new drug working for you long may it last
lOVE jO X

Hello Maureen

when I had CDT i HAD 100MGS THALIDOMIDE everyday 40mgs of dex 4 times a week as well as a dose of cyclophosomide 250mgs once a week had this for 4 cycles it was the dex that effected me quite badly hope this helps
Jo