Hello Ivan

so sorry you have had to join this group,you will be in shock and it will take a while to come to terms with it I dont think anyone truly does, as for crying I also have a close family we all did a lot of that.
This site is so valuable for help and information and the Myeloma uk help line is brilliant there is always a professional…[Read more]

gina
I can understand your anger this is terrible your mum is entitle to ask for a change of consultant and hospital if this is possible for you I would do it, thinking of you
Regards Jo

Hello Bridget

I am so glad you feel enough to post we have missed you have the new bad back pains gone from your back, swollen legs are terrible when I first had the renal failure my legs were like elephants to say the least my kidney consultant told me to drink at least 3 ltres of fluid not just water and try to walk as much as i could this…[Read more]

Hello min

new kitckens are great we had one a couple of years ago it gave me the chance to have a good clear out in fact I chucked things i could do with now so beware,hows Peter doing is he feeling any stronger

Love Jo x

Hi Eve

It was a lovely part of wales yes there were loads of scousers in fact at first I didnt think we would meet a welshman we didnt until we got into into snodonia proper as for the weather we could not believe it what luck even got a bit of a suntan

Love Jo8-)

Hello Gill

Sorry to hear about stephens infection lets hope they can get it under control soon. I had quite a few canulas in the crook of my arm as they find it hard to get a vien so I know just how uncomfortable it can be fingers crossed this is a temporary blip

Love Jo

Hello Dia

glad you are now feeling a bit better lets hope the leg is not a Velcade problem and can be sorted out sinply:-) I have been reading up about the research done in american they have come to the conclusion that a lower dose of Velcade over a little longer period has had the same results but with a lot less side effects I hope our…[Read more]

Hi Eve

We had a great holiday in wales we went to all the places you said I also cannot spell them. Took our grandson up snowdon on the train the weather was good and it didnt rain all week which was such a bonus so a nice time was had by all love to slim
Love JO X8-)

Hello David

glad you had a good holiday on the rhine you should have a good time in st ives we have just come back from northwales we had sunshine all week which was a real bonus as we took wet weather gear expecting it to rain
Love Jo

Hello Eve

I hope Slim has good news on friday, I always get apprehensive every time I go to the clinic I feel like its the sword of damacles hanging over my head silly i know but thats just how it is

Love Jo x

hello Jean

so glad you had a great holiday it can really buck you up you must have been glad of the sunshine as the weather has looked awful in Northern Island the last couple of weeks,Really glad Frank was on top form I had a giggle at the Mr and Mrs it must have been a good laugh:-)

Love Jo

Thanks Keith!
Like you, I've lost a little weight since the steroids stopped and have this feeling that I may lose a fair bit more in hospital….they brought my dinner in earlier….quiche that was half uncooked and oven chips, again half uncooked (I don't like them at the best of times!). And while I asked for jelly, I got some sort of trifle.…[Read more]

Hey Lorraine,
What was the mouthwash called? Need to ask for it NOW!!!
Thanks
Debs x

Hi John,

I was in your position when I was diagnosed in July 2009. I gave in to the treatment option in November 2010 but I have to say, I wonder if I gave in too soon. It has been quite hard so if you don't have to do it, don't push for it. They will do it when they think they need to.

I'm currently in hospital having my SCT….hoping to…[Read more]

Hello Eve

we are going to conwy taking our grandson so not much rest for Geoff as they are best buddys hope we can get him on the beach for a bit but we are taking our waterproofs and there are plenty of castles which he loves , we hope to go up snowdon on the train Regards to Slim
Love JO8-)

Happy 60th Gill 20

I hope you had a celebration and had a good day
Love Jo:-)

Blimey Dia
And we thought you were on holiday, you have been through it lets hope this is the final fling for this horrid disease just before you get CR:-) ALL fingers and toes crossed. We are off the sunny Wales on monday for a week taking our grandson I will say hello to snowdon for you8-)
Take care and keep well
Love Jo x:-)

Hi Eve

is everything going on ok with Slim at the moment I know you hd a good hospital visit but have they told you if his treatment is working yet I do hope so. Are you feeling not so stressed now i do hope so
Take care regards to Slim
love Jo

So glad to hear from you Bridget I was really worried for you I hope they soon sort out the pain and you will be back to your cheery self looking forward to you getting back on line will e.mail you when I get back from wales we are taking our grandson for a weeks holiday:-)

Lots of love JO XX

Hi Scott

I will look forward to your post good luck for next week I will have to give you an answer the week after as we are taking our grandson to Wales for a week
weather forcast looks terrible but hey ho that british weather for you

kEEP Well
love Jo 😎