hello Dia

I am not on any drugs for mm at the moment just sodium bicarbonate and alphacalcidol plus a 4mg steriod all for my kidneys. I had 2 pulses of DEX on their own then 4 pulses of CDT which put me into plateau this was from jan 2009 to april 2009 then i took a small dose of thalidamide for a further year no problems until PN set in…[Read more]

Dia
I agree about the dosing I have been reading a lot of stuff from America and the conclusions they come to are most people are over dosed just because it is the recommended dose. I go to UCH once every four months and they are doing a lot of work with people just giving weekly doses of Velcade and coming up with good results they also said to…[Read more]

Dia

big mac mmmmh sounds more like a safari than lunch lucky there wasnt any seagulls they might have mugged you they seem keen on MCD'S 😎 Janet must love your small suprises what will you think of next

Love Jo;-) x

Hello Chrissie

I think the treatment which is chemo is very agressive and can leave some people really down, ill and depressed once it starts to work you feel a whole lot better but it is a struggle at first as for the shakes i had terrible ones due to kidney damaged cause mainly by to much calcium in the blood they gave me chemicals to get it…[Read more]

Thats alright then you had me worried for a while

Love Jo;-)

Dia

I see chickens on the horizon lets hope the beast has been kicked into touch all the news sounds positive so fingers crossed
Much love JO;-) xx

hello Gill

so sorry stephen is feeling rough but lets hope with everything crossed that this works then it will be worth it give him all our best wishes we are rooting for him:-)

Love Jo x

gina

so sorry to hear about your mum I hope the hospital sort out her infection pretty quickly It must be frightening for her and so worrying for you keep your chin up
Love Jo xxx

Hello Vicki

I was 61/2 when I was diagnosed had four months of CDT which I managed
very well had a bit of constipation and of cause DEX mood swings which I think most people get I am under Lister hospital in Herts and UCH london
I have been in remission for just over two years I could not have an SCT as MM caused me to have serious kidney…[Read more]

Tom

Are you ok why are you back in ward 18 i hope it is nothing to bad
onwards and upwards;-)
Love Jo:-) x

Lovely 😉

Love Jo x

Ian

the very best of luck for your mini allo i hope all goes very well;-)

Keep Well Jo x

Dia

I think you are allow an eeyore moment now and again the only problem with MM with me at least is every twitch ache and pain is it MM, not usualy but it s the first thing that goes through the mind I am glad you are feeling a bit better today it does sound as if the treatment is staring to work which is very good news 😉 😉 😉
Lots 0f…[Read more]

Hi shirls

i think you must have nine lives dont use up toooo !!!many at once, glad you are recovering well it must have been a great relief it didnt trigger the MM again

Love Jo 😉

Dia

dont give up, never has a truer song been written 😉
Lots of love Jo

Dia
please keep going I love the songs I dont think anyone would mind
Love Jo;-) x

hello Gaye

I hope you are ok and got on well at the hospital thinking of you

Love and hugs JO xx

David

the grand tour, I hope you have a great time and it all goes smoothly lets hope it stops raining in scotland for a while they have had bad luck with the weather just lately

Love Jo 😉

Dia;-) Dia keep them coming have enjoyed them all so far
Love Jo 🙂 x

Hello David

glad your teeth are getting back to normal be careful not VASTYBYTE to
hard

Love Jo x 😉