Hello Dia

I think the idea of opting in rather than opting out is a good one I never remember to uncheck good suggestion

Love Jo 🙂

Hello Eve

Is there any way you can change hospitals and get into one of the London units with such better standards of care I believe Kings and UCH are really good I attend Uch they cannot be more careful and caring do you think now Slim is home he could take the journey I really do hope the CDT works for him
and he will feel better soon
Love Jo 😉

Hello Dia

you must let us know when you release your CD,s I think I would probably
like Etcetera as it has a mixture of what I like especially jazz and blues but i do like shanty bands they make for a really jolly evening. fingers crossed for the velcade lets hope it gives you loads of energyxxxxx

Love Jo 😉

Hello Dia

like the song I beginning to enjoy all your music 😎

Love Jo xxxx

Hello Min

so glad they have have come up with a new plan, THALIDOMIDE is a bit of a wonder drug I so hope it works again for Peter. Did you know how they dicovered it worked for MM they were treating patients for Leprosy and they happen to treat some one who also had MM a eureka moment the MM was put into remmission and they discovered it was…[Read more]

Hi Min,

I often read posts and don't respond, but I really wanted to write to wish Peter AND you, all the luck in the world on the journey you have ahead of you. This MM is just awful in what it does to Peter, and I hope that the plan they have set up, does what it is supposed to and that you guys get a bit of a break at the end of it.

It…[Read more]

Hi Bridget

I didnt get the news letter is it on line if it is would you mind forwarding it to me Hows the cellulits is it getting any better

Love Jo xxx

Hi.
I'm at the royal Marsden in Surrey and can't fault it. The only thing I would mention is distance. I travel a 90 minute journey to my hosp and it can be tiring. It's not so bad when you're only going once or twice a month but I come in twice a week now. I'm doing ok on the treatment so drive myself and find it manageable but if my side…[Read more]

well Dia it sounds like the sort of book I like to read please remember to tell us when it is published
Jo xx8-)

Hello Bidget

so glad they are sorting out your pain and you will not have to worry about get an appointment with the Docs its like getting in Fort Knox at my doctors it fills me with dread if this new NHS thing goes through and they are in charge
Love and big Hugs Jo 😎

Hello Roberta Eve and Angelina and Min
A good friend of mine once said to me change your KARMA let go of what you cannot contol and you will get back what is right in your life, in times of crisis true friends and family will be there for you and thats all that is important:-)
Love to you all Jo big ((((hugs))))

Dear Min

I am so sorry to hear about Peter my thoughts and prayers are with you perhaps a new test will show up something better they often get some of my test wrong at my local hospital so I have to retest they mentioned to me at UCH if all else fails they may go back to CDT as it worked first time
maybe this could work for Peter

Love Jo x

Hello alastair
I am under DR kwee Yong at UCH lONDON she is a recognised expert in the field of Myeloma you could try there if you are able to travel they have a very good team in the care of Myeloma

Regards Jo

Great to hear you're feeling better and on the up! I have to say I agree….I can cope so much better when I know what to expect. I wipe out the week off so that I can just chill out now. And then plan a nice meal out and a few drinks at the end of that week when I finally start to feel better 🙂 Red wine of course….oh and g&t to help with the…[Read more]

Hi Dai,

Sorry meant to reply before but have been a bit caught up.

I'm really sorry you're suffering (even if in a macho way!). I'm on velcade too (with dex and cyclophos) and am currently just starting on cycle 4. I've had to have my dose reduced today as I've started to get slight pains (like shin splints) in my calves and more severe…[Read more]

Hello Dia

sorry I caanot give you any comment about Velcade but I put a lot of thought and prayers for you all if I could send it down the wire I would 🙂 like Tom I dont have all the words but lots love and hugs 😎

Love Jo xx

Hello Kath

just wondering how you are as you havnt posted just lately I hope you are ok 🙂

Love Jo xx

hELLO gAYE

So sorry your RT treament has not worked I hope they can sort you out and give you some relief:-) glad the pomalidomide is holding the MM lets hope it soon starts to get rid of it my thoughts are with you

Love Jo xx

Thanks for the info Dia America is so much more advanced than us it gives me great hope for new treatments
Love Jo x

Oh Dia

such beatiful words you can give a voice to what others think

Love Jo x