Hello min

Sorry your hols turned out so rotten especially as you had been looking forward to them Peter probably caught his infection from the plane I got a terrible cold last month when we got back from the canaries I know what you mean about two cardies cold up your way we visit friends in Leyburn in the yorkshire dales and its always a few…[Read more]

Hello Gill

What awful news Like minimouse how can this doctor look into the future like that who knows what revlimid will do I speak to a lady at my support group who was told three years ago not much hope they put her onto revlimid
which at the time she had to fight for three years later she is well and still in remmission she was too old for…[Read more]

Aahh, Gaye,

So sorry to hear that the pain is still bad for you. Must be so hard….bad enough dealing with the damned disease anyway, without that on top of it all. But I am really chuffed to hear that all is going well with the pomalidomide…that is good news!

And just to join the…[Read more]

Hi Jonny,

How are things going with you? Hope treatment is going ok and you're not suffering too much.

Just wanted to catch up and check in on you!!!

Debs x

Hi Mike,

Just thought I'd see how you were doing as you must be into your second week of revlimid now? How has it been? Any major side effects? Meant to mention that your taste will probably go up the spout…but you probably know that by now! I remember my consultant saying I could have a glass of wine if I wanted but that I wouldn't…didn't…[Read more]

hi kieth

I am following your story closely I am not on velcade yet they tell me it will be my next treatment I am really not looking forward to the DEX as I am a type 2:-/ diabetic so have to go on insulin as steriods really raise sugars I think about you all,all of the time hopeing everyone is successful

Good Luck with the next SCT

lOVE jO XXX

Hi Andy

Sorry to hear you got the diagnosis so young. I was 34 when diagnosed in 2009 and felt like it was really unfair!!
Hope you're being looked after well…think you'll like the under 50 site though if you email Scotty!!

Debs x

Hello David

Where do you find these things thanks for the laugh

Love Jo x

Hello Jean

So glad you had a good holiday It does make a difference good luck at the next appointment and all will be well my appointment is the week after Easter I will get my latest PARA results so fingers crossed please let me know how Frank gets on
Love Jo xxed

Hi EVE

have you tried good old vanilla complan I made a milk shake from it with fresh bananas or strawberrys you can also thicken savoury soups with it there is also something called build up they give it out in the renal clinics
pobably not all that pleasant just a hold your nose job

Love Jo:-P

Hi Keith,
How are you feeling about the transplant? It's good to hear that the velcade has worked for you…it seems to be doing the same for me, so I may not be far behind you with a transplant date!

Bridget is a gem isn't she….most definitely one to count on and we shouldn't forget that! And I'm really sorry if you felt that none of the…[Read more]

Hello Jean

Did you have a good holiday with no problems are you all nice and brown
Love Jo x

Hello David

I really enjoyed that you do find some good things

Love Jo:-D

Oh Bridget and kay,

So similar!! I've gone up 1-2 dress sizes no matter what exercise I manage to fit in on the odd good days I have. And whilst I eat, I don't feel I overeat massively….occassionally yes (it is that taste thing isn't it Kay….awful!) but not loads. I am hoping some of it is water retention.

And like you Kay, everyone…[Read more]

Just a quick update for anyone who is on the Myeloma XI trial/ interested in Velcade treatment.

I've just finished the first two treatments of cycle 2, and got my cycle 1 paraprotein results back….have gone down from 27 to 15, so I am over the moon, especially as my consultant had warned me that I may well not see a decrease in the first…[Read more]

Thanks for your responses guys!

I will let her know what you have said and perhaps suggests she just checks out normal sinus remedies that DON'T have ibuprofen in them

Cheers
Debsx

Hi Dai

Did you enjoy the info day hope it did not make you too tired I hope you found it informative and relaxing and well worth going to if I am ok I will go to the London day in October

Love Jo 😛

Hi only me

I think there might be something in the hereditay link in the clinic I attend ther are two sets of brothers with MM plus a gentleman whos father had it a bit more than a fate

Love Jo

I am so glad that it is not just me!!!

I have got so fed up with the hairy top lip that I have been having electrolysis on it for the last few weeks….No offence to men, but I am fed up of having more hair than my beardless wonder of a husband!!!

Sadly, can't deal with the weight gain in quite the same way, but nevermind!

xx

Congratulations looks like its about time he made an honest woman of you Tee hEE

Love Jo8-)