Hello Jill
I had shingles last summer terribly painful I am really sympathetic for your mum I think she was a bit late for the antivirol but the doctor could have offered her some aciclovir cream I tried an old treatment which was dabbing the pustals with cider vinegar you smell a bit chip shoppy but it worked better than camomile and dried it up…[Read more]

So glad that it has arrived for you Gaye!!

As Tom would say, 'onwards and upwards'!
Debs x

Hello Jean

I have not had a bad pain but do get tinges from time to time I am afraid I am with frank this time I am sick of going to the hospital so I just will not put everything down to MM I know its a bit naughty of us it must be in our nature

Kind regards Jo :-/

Hi Amanda

Welcome on board to you, and your sister and mum if they choose to use the site too. It is definitely a fantastic source of information and support, and I for one, have stopped looking elsewhere for answers as it is always out of date!

I presume that your mum has been diagnosed with assymptomatic myeloma if she doesn't yet need…[Read more]

Hello Gaye

I am so sorry your pain has not gone away I hope the RT soon begins to work
you must worry a lot about the drug not turning up I dont think these people realise what it really means to people like us you can do without the worry lets hope things get better soon.
Love Jo 😎

Hello Tracey

So sorry you had to join this site but this is the place where you will get help and support also you can phone the great people at Myeloma uk they are so kind and know so much about the condition you just have to give them a call.I had CDT which worked well for me I managed to tolerate a 100mgs of Thalidomide for a year after CDT…[Read more]

Hi Tracey,
Welcome to the site and hope that it helps you as much as it has helped me!
Can't say much about CTD as am on a different drugs regime, but just wanted to mention (in case you don't know) that you can't be tested for coeliac's if you have given it up….they need you to have been on it fairly constantly I think. This is said with my…[Read more]

David

sorry you did not get remission from your SCT but my docs say plateau is pretty good and you could be in that stage for a long time fingers crossed
you are an inspiration to us also with your cheery comments and little jokes we are all with you SO CHIN UP 😛

Love JO 😎

Roz

How lovely you must be a great friend I agree with every word

Lots of love jO X

:-/ Glad I dont get squirrels like that in my garden

Love Jo 😎

Hey Bridget

There is one in london in october I hope to see you there I am sure you will make it

Lots of love Jo x 😎

WELL DONE MIN
I have been to a myeloma info day and It is brave people who stand up and give talks that make the day the carers are so important and myeloma uk do not forget that fact.

Love Jo xx8-)

Hurray Min 😎
II
great news your life will once more become yours (with in reason ) the days of getting up and having to go to work will soon fade i hope Peter is well enough soon to go for a short hloiday it will do you both good

Love Jo x

Hello Clara

When I was on CDT my ankles were swollen a lot of the time I could not take diuretics due to kidney damage I had to drink upto 3ltr a day which didnt help he should have a word with the doc or nurse I am sure they will give him somethin as for the rash I found that it was the antibiotic I was given (CIPROFLOXIN) that caused it is he…[Read more]

chin up Bridget
I am so sorry you are feeling so rotten you are such a fighter so I know you will not give up I know several people on Revlimid and once they have got used to it its ok one lady in my support group has been taking it for three years she was one of the original people that went to the press to be allowed to take it she now has a…[Read more]

hELLO kEITH

I have been reading a report from america where they have decided to give velcade once a week only they have found out that it has the same effect but almost non of the side effects I dont know why we dont get that here it would but a much better way of treating the disease

Love Jo x 😎

Hello Jet
i have not tried any alternatives for the myeloma but i have had accupunture for pain relief which worked quite well

Regards jO :-/

Hello Henry

welcome to the site sorry you have had to join the club I was diagnosed Jan 09 age 61 had the CDT which worked well for me although I did end up
with numb feet due to the thalidomide this is a common side effect my toes are still fairly numb but small price to pay as the treatment got on top of my Myeloma I have a monthly infusion…[Read more]

David

You are part of the liberation movement and dont you forget it

Love Jo x 😎

hi Sarah

I was made to wear a liberty bodice hated it mine had button which attached
to my fleecy lined knickers (YUK) had to wear them all winter but only knee socks so legs got chapped all winter so not so toasty

Love J0 x:-)