Hello Min

Glad to hear you are a bit better as for work it sounds as if it will not be for much longer good luck

Love Jo x 😀

Hello Keith

I agree with all you are saying my mp is a tory and for my sins I voted for him in opposition he worked really hard for the community so I thought I would give him a chance but now he is one of Daves boys and since he has become housing minister he tows the party line. My GP was hopeless I went to the surgery hardly able to walk and…[Read more]

Hello min
sorry peter is having such a hard time at the moment the swelling must be awful.Due to my kidney damage they had to reduce the dosage of aciclover as it was not good for the kidneys it help reduce my ankle swelling although when I stopped taking it I got shingles which was terrible so it's worth taking it.
I hope your sciatica is…[Read more]

Happy Birthday Bridget. I am glad that you have had a lovely day and am glad it makes being shattered well worth it!

Thank you for all of your support and comments on the site…I often read and don't reply but as others have said, you are a true rock to so many people….and so positive which is what we all need…but you manage to do it even…[Read more]

Mine has come back Keith….just as I have gone back on the dex…the good news is it's stopped me picking this time, so perhaps the beached whale effect will calm down!!!

We'll have to keep an eye on it and work out what it is exactly that is causing it 🙂

Debs x

Hi Bridget

I don't know if anyone else is worried but I am about the GP 's holding the money will they be willing to fund second and third treatments or even first expensive ones will we all be fighting the system agsin

Love jO :-S

HAPPY BIRTHDAY BRIDGET 😀 You never moan not even when you are on DEX or as i say dexitude :-/ all you ever do is give kind words and encouragement hears to the next four years and many many more

Lots of love jo x

Hello Bridget

How are you is your treatment going well are you feeeling any relief.
I had to giggle about the shoes at new years we went out I had a smart blue velvet dress so bought a pair of really nice silk blue shoes with two inch heels felt the bee's knees then sciatica struck so I had to go to town and get a cheap pair of flattys £6.99…[Read more]

Hiya Keith,
Now it could be the zometa I suppose…I have that too! I'm with you about not liking it. The first month, it put me off my food….hated the fact that everything tasted the same…even the glass of champagne I tried!! But since then it's done the opposite….on my quest for normality I eat and eat and eat and now I'm becoming the…[Read more]

Hi Keith,

I'm not on velcade but I would describe the taste that I get on revlimid/dex/Cyclophos as being like sea water and quite salty. Even glasses of water taste of it??

Do you take the velcade with anything else? Someone else hadn't thought of it tasting salty when I mentioned it and then realised that was exactly what it was that they…[Read more]

Hello Min

Sorry Peter is not feeling so well I hope things get better soon, Benjamin looks lovely i Bet he is missing his walks if your leg is so bad I hope it clears up soon mine lasted for eight weeks I know what agony you are in have you thought of accupuncture it really helped me. I do hope you can get your party I am sure it will be ok…[Read more]

Hi Kay,

I remember really well what you are describing….both with the BMB and the anticipation. I think you'll be finding out today so good luck with it all and I hope that your consultant is wrong…they quite often are!!!

If you get on the trial and what to have a natter about it, drop me an email at gascoyne2@virginmedia.com. I'm happy…[Read more]

Hello Gaye

foot massage sounds great glad it relaxed you had one once by a chinese accupuncturist it started of ok then he sharted on the pressure points and soon had me writhing in agony no relaxation there then, felt ok after.
I know what you mean about taking DEX i found it went down better with a small glass of milk if anything can make…[Read more]

Gaye
this was so well put when I was first diagnosed I did not want to speak or see anyone I was afraid of the shutters coming down in peoples eyes when the word cancer is spoken I joined this site and it was my saviour it made me realise i was not alone I then found out my true friends and they let me know in no uncertain terms it made no…[Read more]

Hi Min

glad peters kidneys are ok mine are good and stable at the moment but i do get swollen ankles in the evening but they are ok in the morning I think it is to do with fact I have to drink at least two litres a day which is really hard for me at the start it was three litres i felt like I was drowning, I really hope Peter responds to…[Read more]

Hello Min

Managed to do it took a picture from my lap top camera hadn't thought of that, its not very good but you can now at least see my moon face caused by the steriods I am on at the moment to help my damaged kidneys, are Peters kidneys ok now mine are working at about 40% I luckily managed to avoid dialysis but only by the skin of my teeth…[Read more]

Good Morning Kay
ouch another painful bone marrow I have had three all painful because I did not realise you could have some sort of sedative will ask next time
any way your consultant may not be right life is full of supprises lets hope its one of those times
Good luck regards Jo 🙂

This is realyy clever where do you find these little snippets to amuse us

Love Jo 🙂

Hello John
welcome to this site I dont expect anybody really wants to join but now you are here you will find much help and support and you will learn much about the condition more than most clinics will tell you.
Good luck with any future treatment
Regards Jo 😎

hi i tried to do that but it didnt work i think i need to use another image
but i cannot remember how to do it

Best wishes jo