SallySaphir

  • Hey everyone 🙂
    Hope you're all doing well on your journeys.
    Update:
    Dad is on week 3 of his first cycle and is doing ok.
    Had a little blip a couple of days ago after his second lot of Dex and ended up in hospital for a night as his glucose levels had spiked up to 25.4!!!! This was expected but as no interim measures were in place to sort…[Read more]

  • Thanks everyone again for their kind words.
    In comment to the Dex I spoke to dad today about not feeling he had to take my son to school every morning. He has been struggling with sleep and he got a little irrate, which is out of character. He said i've got to keep things the same as i'll not get out of bed. He loves his time with my son and…[Read more]

  • Hi everyone,
    Hope you're all coping ok. Dad started his treatment on thursday he's on the Myeloma XI trial on the RCD pathway and is doing well so far with some pain relief at last. He was initially overwhelmed by the quantity of tablets he needs to take but I bought him a pill box to take away the anxiety of counting them out every day. He…[Read more]

  • Hi everyone,
    Finally had our visit at the hospital on monday and Dad has had an infusion to bring down his calcium levels which all went fine. This was followed by a trip to see the Macmillan nurses for a cuppa and chat while we waited for his appointmet with the docs about his upcoming treatment. The ladies there were lovely and have suggested…[Read more]

  • Thanks Eve,
    I will definitely look into this issue further to ensure Dad is OK. I suspect that he will need a fair amount of care simply because he struggles now being arthritic, diabetic, suffering with COPD and atrial fibrillation! Just getting socks on and in and out of the bath have become an issue recently but mum will not help him.
    I'll…[Read more]

  • Hi everyone,

    Dad had a BM biopsy and blood tests back in 2009 which identified MGUS and has been monitored since. They seemed to think it was a case of sit back and wait and see what happened and hence we're now at a point where he has developed MM. This was diagnosed with another BM biopsy, bone scans and more blood tests last week. He is…[Read more]

  • Hi everyone,

    My name is Sally and my fabulous Dad (64 years)has just received the news yesterday that his MGUS(diagnosed 2 years ago) has developed into MM. To be fair we were expecting it as his paraprotein had tripled over 6 months and he was experiencing back pain, fatigue and just recently tiredness and loss of appetite. I am in the…[Read more]