Hi Jeff, it will get easier believe me, i am sorry for your loss, keep talking to him and think of those great times that you had, love to you San

Hi Rosie, my love to you and your wonderful family, super to see your photo of Chris in better times, i really feel that our loved ones are not far from us, my nephew aged 7 took it hard when his Nan died at the beginning of this year, lots of hugs , tears, time and talking about heaven helped and we talk often and have her beautiful picture…[Read more]

Hello Eve, i am so sorry to hear your sad news as you can see i have’nt been on hear for a while but i still think of everybody and wonder how people are getting, i send you love and hope that you are coping with your loss, it has certainly taken me a while to feel as i used to before losing our dear mum,you are such a great lady on here and your…[Read more]

Hello Jane i am so sorry for your loss, sadly myeloma is not always picked up quickly and i suppose that the crohns disease masked some early symptoms?, we lost Mum in january and know how hard it is for you all and so sudden for you all, you have a lovely grandchild coming a little light for the family, i send you love and so hope that your pain…[Read more]

I am so sorry to hear your news, i lost my mum in january she was diagnosed with mm in march 2013 and so we did’nt have long its not easy, i have days when i cry and better days when i can recall all of the good things, i feel that she is still around and really hope that this is the case. Easter without her has been hard and i know that it must…[Read more]

Hi Dick lets hope that things remain stable for as long as possible, it is great that you have such a good consultant to support you, lets hope that the chemo is a long way off, best wishes to you and your family love San X

Hello Poppy, how wonderful that your dear Gran is at home with family and carers, i am thinking of you and Gran and am so glad that you are able to spend time with her at this difficult time, love to you San X

Mandy, thank goodness for your Dr Bloor, he never gave up and neither did you!! so pleased for you and your family that you are at home today, and wishing lots of luck with your next course of chemo, do you know what he is giving you? you are a fighter, keep going, you are doing so well, lots of love to you Mandy, San XX

So Pleased for you David, and well done for standing up for Myeloma sufferers, you and Tom are an inspiration to others thats for sure, hope that the cold gets better soon, yes return soon ha! San X

Hi Jean and Frank, sounds like a super pharmacist he knows his stuff, hope that Frank feels better soon, in the meantime sleep is good and easy to get down nourishing food, lets hope that Franks Consultant can throw some light on these other symptoms, is the rib pain to do with the shingles? i wonder, bananas are good for low potassium, take care San X

Hi Julie i am thinking of you all, i understand what you are going through and i too wondered if we were embarking on the right treatment and really it was all too much for my Mum and Dad to understand, i knew a little more because i could research it and found this forum so helpful and the myeloma nurses and at least felt that i could ask some…[Read more]

Hello Julie, i know how hard this is for you, it sounds as though Velcade will help push those PP’s back again and i so hope that Mum has some remission again soon and you know a year is good, i am sure that all will be done that can be done for her, sadly my Mum was unable to tolerate Velcade and the RCD trial affected her liver and so she only…[Read more]

Thank you Richard for your kind words,it is lovely to hear from you, yes i will stay in touch with the forum, would love to if people think that i may be of help, gosh yes Mum was determined, the Consultant called her a ‘tough lady’ and i dug deep in order to help her through this, though tomorrow [friday 31st] is her funeral bit wobbly about that…[Read more]

Dear Mavis thank you for your message, its strange but i am already hearing ‘her voice’ and i know that she is still with me, i am heartened that she is no longer in pain and yes we will celebrate her life, Mum had a good sense of humour and her steely quiet determination kept her going, the Consultant said that she was a tough lady she was’nt…[Read more]

Sorry to hear that you are feeling so low, you are wise to try another way forward,there will be another treatment plan for you and hopefully you will be in remission again soon, love to you and good luck tomorrow when you see your Consultant hang in there and be determined to get what you need! San xxxx

Thank you for you kind words Helen, Megan, John and June, xxxxx

I am sad to say that Mum passed away this afternoon, i used to tell her about the lovely people on this site and the positive attitudes that are shown, she is loved and may no longer be here physically but will stay in our hearts, love to you all i will stay in touch San xxxx

Good luck Tom for monday, i think that velcade is now given subcutaneously as this reduces pn, you will sail through i am sure San xx
Helen so good to hear that you are doing well and feeling better, San xx

Hello John, it could well have been the sodium, however Megan is right in advising you to contact our myeloma nurse or your haematology nurse, my Mum had seizures due to her pain medication she was on oxycontin at the time which when reduced and changed to oxynorm stopped. Mums sodium level also dropped after starting Velcade, her fluid intake was…[Read more]

Hello Deborah, sorry to hear that your pp’s have risen, there are many treatment regimes and i am sure that your treatment team will do their best for you, its hard not to worry about future treatment but hopefully when the decisions are made with you it will work out well for you and get you back into remission soon,and yes lets hope for a cure…[Read more]