Hi Tom, have a great time on holiday and well deserved!! enjoy before your next round of treatment, have fun San xx

Well, wishing everybody a good Christmas and sending love to you all, take care and love to all San xxx

Hi Clover, i don’t think that there is a strong genetic link or so my sister and i were told but in time we will all know more, maybe there will be triggers that we can avoid, try to keep your immune system strong and stress levels down and enjoy your life please don’t dwell on it, i so hope that your Dad is doing ok at the moment, and hope that…[Read more]

Thank you Richard and Megan for your posts, yes i am hoping that Mum will be settled in a lovely nursing home and that the family can visit her there over Christmas, she is having a blood transfusion today this might help her feel better, after her discharge from hospital i guess that little else will be done for her unless infection starts up,…[Read more]

So pleased for you David you are doing so well, some people seem to be sensitive to it and it works so quickly for them, it did for my Mum too, take care and keep going San x

Hello Pauline and Marc so sorry to hear your news it must be hard for you both as Marc was you carer, i found this forum so helpful, such lovely people and so much knowledge and support, as you read peoples stories you will learn and of course good advice is given, take care and i so hope that the treatment gets this myeloma under control really…[Read more]

Hi Richard, have you spoken to nurse Ellen about this she may be able to throw light on the treatment for you, i hope to ring her tomorrow re my Mum, still jaundiced and we have to see the gastric consultant tomorrow, guess its her liver as there are no gallstones, and naturally no chemo at the moment, she has had 3 cycles of revlimid cyclo and…[Read more]

Hello Eve and Slim wishing you the best holiday, take care and yes build up your strength and have great fun, San xx

Hello Chris, is this new one as mentioned on the myeloma website today something that you could ask about, you would need the clinical trial and it is for relapsed myeloma?? best wishes San xx have a good bank holiday weekend everybody x

Hello Dawn, just wanted to send good wishes to you, take care, and i am sure that you will benefit from the help on this forum as you make sense of what is happening to you and your treatment options, San x

Hi Helen i know that Mum feels sick on her cyclo day even with anti sickness tablets and teary after a couple of days after dexy, but it may not affect you in the same way, hope that your energy levels stay ok , take care and good luck on your new regime, and no more poking yourself in the eye!! love San x

Dear Christine and Chris, you are so right never give up!!, there will be something out there to help i am sure, keep pushing and i so hope that you find the best way forward soon, wish that i knew more in order to help out, love San

Hello Georgie, my mum has mm diagnosed 12 weeks ago and suffers greatly with fatigue, it is so hard because it takes every ounce of energy just to get washed and dressed, she said today to the rowcroft nurse that she so wants to do more, she is tearful at times and needs to talk it through, the nurse explained that the myeloma itself and the chemo…[Read more]

Ahh thank you Ellen, today Mum had an ultrasound abdomen but no gallstones or obstruction so as you say may be the liver itself, we are waiting to hear re the 4th cycle of revlimid, and as you mention maybe a short break and reduced dose, i will let you know as it may help somebody else in the future, poor Mum seems to be beset with problems…[Read more]

Dear Helen, sorry to hear that you are having some difficult side effects, and Dai hope that all goes well on your regime too, my Mum was seen in clinic today her protein is down from 1000 to 11 the Consultant said, so the RCD is doing its work she has had 3 cycles so far but we are waiting for todays bloods as she is still a bit jaundiced so not…[Read more]

Well Helen, i have heard that its not always sunny but i don't believe it!, we love Sennen and have been lucky when we go too, its a smashing county, but last week here in Devon it was lovely too so can't complain, wishing you a super warm summer in Northumberland, take care, love San

Hi Ali, yes it is torture for our Mums waiting around at clinic, this is not a kind illness and every day something seems to crop up, sadly i am waiting for a bit of light at the end of this tunnel for Mum but so far its one step forward and two back! still not sure why the jaundice, bloods have been taken and we will see on monday when we see the…[Read more]