Hi Helen, glad that you had good weather, its always sunny in cornwall ha! hope that you feel better after your hol, San x

I am so sorry Hawkeye, love to you at this sad time, San xx

So sorry to hear your sad news, i do hope that you find answers to your questions soon, and wish you all the best with your run, San.

Hi Ali, well i am off to clinic on monday with my Mum as she too is on the revlimid trial and i will quiz on this too as Mum needs to make and informed choice, i too read this recently, my Mum is jaundiced at the moment and clearly something is going on maybe a drug reaction but they are going to ultrasound her abdomen, gosh know what you mean…[Read more]

Ahh dear of you, its hard and the drugs may make you feel emotional as well as this illness, but on here you will meet some great folk who have been through it all and their stories are inspiring and practical and may give you heart, take care and just look after you health best wishes to you and your family, San.

Ahh good luck Richard, i am sure that they will keep a close eye on you, take care and so hope that this works for you San.

Hi Jill, sorry to here that Mum is low in her mood at times the dex makes my Mum teary and just the whole experience really, all the we can do is listen, give love and be patient, however there are counsellors who could help, they are attached to the service and sometimes its easier for our loved ones to talk to somebody else, this might be…[Read more]

Hi Helen still sunny here!! maybe cloudy saturday then good they say so enjoy, anyway you will have fun whatever the weather i am sure, happy for you re your back not being MM and just a slipped disk hope that you feel better today, take care San xx

Hi all you are all so inspiring to me and i pass this on to Mum who has come home and is doing well with Dad who is so supportive of her and he was one who shunned illness so its been hard for him too. They to are considering and cleaner and having someone to do a bit of gardening, and it great if the person coming in is a cheerful, wishing you…[Read more]

Hello, i know what you mean Jill and Sandie, my mum is 76 and came home from hospital today hurrah!! but gosh the tablets!! i have spen't the afternoon helping her sort them, and as you say the treatment makes you feel so poorly but she needs them,Mum has Dad helping her with carers now also, i did feel for your Mum Sandie living on her own she is…[Read more]

Hello Terry, thank you for the information, and good luck with the trial, hopefully soon there will be good news re improved treatments for all, my Mum is on the RCD clinical trial as her first treatment after diagnosis, not sure if thats good or not!! there are so many combinations out there, best wishes San.

Hello Helen, just wanted to wish you a lovely holiday in Cornwall, we live in Devon and its warming up here now and so you should have a super time down here, esp with all those good pasties!! take care and hope that all goes well for you now, San xx

Hello Dick, ahh at least you know what caused your increased liver enzymes now so thats good. Hope that you can restart your chemo soon, best wishes San.

Hello David, wishing you a wonderful trip, and so hope that you are able to get on top of the pain soon, my mum is doing well on oxycontin small doses regularly, the palliative nurses can help with pain control , but you may have already seen them? take care San xx

Hi Ali, thank you for asking, Mum should be coming out of hospital in a day or two, she had her assessment with the OT at home yesterday and did well, she tried so hard and after 7 weeks in hospital well i am so excited for her but with some trepidation hoping that Dad can cope and the unknown and he is just recovering from a chesty cold!!, she is…[Read more]

Hello Ali, i am in a similar place regarding who to contact when things go wrong as Mum will be coming out of hospital soon and its a bit worrying for us all, i understand that we contact our oncology ward rather than the GP if Mum has a temp and they decide on what is needed ie to come in for i/v antibiotics, and wonder if you need to do the…[Read more]

Hello Ann, so sorry to hear your news, yes its hard to believe how quickly this illness comes on, my Mum has MM and has bone damage, she is on oxynorm as she was sensitive to morphine but there has been no mention of help for her damaged vertebrae. We also knew nothing about MM until 6 weeks ago and this has been a fast learning curve but still…[Read more]

Hi Ali, sorry to hear that your Mum is in hospital hope that she recovers soon, my Mum is still in hospital too but slowly getting better and on her 2nd cycle of chemo, she has come a long way and we hope that she can come home soon, yes the risk of infections will decrease when the better weather gets here and we all open those lovely windows…[Read more]

Hello Tanya, thinking of you and your Dad, take care San xx