[sanParticipant]

Good news Andy, you are doing so well, have a great weekend, San.

[sanParticipant]

Thank you Richard, sounds as though its the more sensible way around in Germany and then there might be less bone damage which is such a painful part of the condition, well wish that it could be different for all myeloma sufferers, every person has their own story, take care and hope that your chemo is going well, San.

[sanParticipant]

Thank you for the info dickB, please could you send me the link as i have german friends who could translate, hope that all is well with you today, my Mum is struggling but all is not lost and we are willing her to improve sadly she has myeloma in her neck area too which was'nt picked up intially and she is now having some seizures and we are not sure why but the hospital are investigating, i wondered whether it was the thalidomide, but at least she is being watched closely by staff, anyway good wishes to all and take care San.

[sanParticipant]

Ahh sounds as though you will be well cared for, i do wish you and your family well,this is such a helpful site and people are so kind, you mentioned diesel, would you know if traffic pollution and myeloma are linked ie living next to busy roads? just a thought there might be some research out there somewhere San.

[sanParticipant]

Hi Rebecca, my Mum has been told that she has the more aggressive form of myeloma and she is 76 now, just finished her first chemo cycle, due to see the Consultant next week re the next cycle i guess, sadly she is not eating hardly at all just drinking a little and now back on a drip in hospital, it all seems up in the air at the moment, hope that you are ok?, best wishes San.

[sanParticipant]

Hi Peter, yes Mum is 76 now she lives in Devon, currently in a community hospital to build her up but intially diagnosed when in Torbay hospital on the oncology ward 3 weeks ago,sadly Mum has quite a lot of bone damage to spine and shoulder and it has been such a shock to the family and so sad to see her suffering, she is being so courageous though,great news that you are in remission, bet that you are over the moon and thank you for your support this evening and we will keep pushing on, best San.

[sanParticipant]

Thank you Peter, it helps to share, hope that all is well with you too, San

[sanParticipant]

Hello, i too have a dear Mum with MM diagnosed 3 weeks ago, she is still in hospital and pain control is the challenge at the moment, as a family we are all shocked to see her going through this, she is 76 and has probably had it since last september as the shoulder pain started then but again the Gp thought that it was muscular, and when she had low back pain he thought that it was a slipped disk, so months on she has bone damage which is so painful and the fatigue is huge for her, she is on the Myeloma XL trial and we so hope that she will improve soon and can go home with our support, as with others we are all reeling with the diagnosis but with a community like this it helps and i know that we have to keep strong for her so thank you, San.

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