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Hi Jeff, it will get easier believe me, i am sorry for your loss, keep talking to him and think of those great times that you had, love to you San

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Hi Rosie, my love to you and your wonderful family, super to see your photo of Chris in better times, i really feel that our loved ones are not far from us, my nephew aged 7 took it hard when his Nan died at the beginning of this year, lots of hugs , tears, time and talking about heaven helped and we talk often and have her beautiful picture around she is very much in our hearts, take care Rosie xx

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Hello Eve, i am so sorry to hear your sad news as you can see i have’nt been on hear for a while but i still think of everybody and wonder how people are getting, i send you love and hope that you are coping with your loss, it has certainly taken me a while to feel as i used to before losing our dear mum,you are such a great lady on here and your fight beside Slim was amazing and your knowledge about this illness is second to none, but now you need to care for you and it will take time to recover from everything that you have been through, love to you San XXX

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Hello Jane i am so sorry for your loss, sadly myeloma is not always picked up quickly and i suppose that the crohns disease masked some early symptoms?, we lost Mum in january and know how hard it is for you all and so sudden for you all, you have a lovely grandchild coming a little light for the family, i send you love and so hope that your pain eases soon it will take time and a lot of coming to terms with however as you say your dear husband did not suffer for long and is now at peace and that is a blessing, San X

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I am so sorry to hear your news, i lost my mum in january she was diagnosed with mm in march 2013 and so we did’nt have long its not easy, i have days when i cry and better days when i can recall all of the good things, i feel that she is still around and really hope that this is the case. Easter without her has been hard and i know that it must be very hard for you and the family at this time too. Take care and i so hope that your pain eases soon, not sure about you but i talk to my Mum lots maybe a bit strange but it helps me, love to you San X

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Hi Dick lets hope that things remain stable for as long as possible, it is great that you have such a good consultant to support you, lets hope that the chemo is a long way off, best wishes to you and your family love San X

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Hello Poppy, how wonderful that your dear Gran is at home with family and carers, i am thinking of you and Gran and am so glad that you are able to spend time with her at this difficult time, love to you San X

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Mandy, thank goodness for your Dr Bloor, he never gave up and neither did you!! so pleased for you and your family that you are at home today, and wishing lots of luck with your next course of chemo, do you know what he is giving you? you are a fighter, keep going, you are doing so well, lots of love to you Mandy, San XX

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So Pleased for you David, and well done for standing up for Myeloma sufferers, you and Tom are an inspiration to others thats for sure, hope that the cold gets better soon, yes return soon ha! San X

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Hi Jean and Frank, sounds like a super pharmacist he knows his stuff, hope that Frank feels better soon, in the meantime sleep is good and easy to get down nourishing food, lets hope that Franks Consultant can throw some light on these other symptoms, is the rib pain to do with the shingles? i wonder, bananas are good for low potassium, take care San X

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Hi Julie i am thinking of you all, i understand what you are going through and i too wondered if we were embarking on the right treatment and really it was all too much for my Mum and Dad to understand, i knew a little more because i could research it and found this forum so helpful and the myeloma nurses and at least felt that i could ask some questions at clinic which i hoped help along the way and i passed on information to my parents. I wished that it could have turned out differently for Mum and we could have had more time but sadly it was not to be, and now Dad is finding it hard because he did so much for Mum even though she was in a lovely nursing home for the last weeks, he visited everyday as my sister and i did and we spent time caring for her and i know that we could not have done anymore as the illness took its toll, i wish that there was an easy answer to your questions but all that you can do is give Mum and Dad love and support and ask questions re further treatment but also it will be Mum’s decision whether to have more treatment or not with her Consultant, my Mum’s Consultant said that there was no further treatment that she could offer as she was unable to tolerate it all and so transfusions and antibiotics for infections were all that could be done for her and making her comfy with pain control,it is such an individual illness and i know that people can improve with the drugs available and most certainly there are many ups and downs along the way, sending much love to you all and i so hope that all goes well San xxx

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Hello Julie, i know how hard this is for you, it sounds as though Velcade will help push those PP’s back again and i so hope that Mum has some remission again soon and you know a year is good, i am sure that all will be done that can be done for her, sadly my Mum was unable to tolerate Velcade and the RCD trial affected her liver and so she only had a few months remission last summer. I know how worrying this illness can be for you all and quality of life is important now for your Mum, i hope that all goes well for her and that she feels better after her blood transfusion.Do ring one of the lovely myeloma nurses, they will know more about the treatment regime for Mum.Love to you San xx

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Thank you Richard for your kind words,it is lovely to hear from you, yes i will stay in touch with the forum, would love to if people think that i may be of help, gosh yes Mum was determined, the Consultant called her a ‘tough lady’ and i dug deep in order to help her through this, though tomorrow [friday 31st] is her funeral bit wobbly about that which i know is natural.Well Richard i will follow you and so hope that you feel better soon and have your remission so that you can do those great things with your lovely daughter and wife without thinking about the illness for a long while, San xx

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Dear Mavis thank you for your message, its strange but i am already hearing ‘her voice’ and i know that she is still with me, i am heartened that she is no longer in pain and yes we will celebrate her life, Mum had a good sense of humour and her steely quiet determination kept her going, the Consultant said that she was a tough lady she was’nt expected to go on as long as she did but Mum loved us as we did her and she wanted to live for as long as she could, take care Mavis love to you, i will still follow you all and send positive thoughts San xxx

Dear Eve, i think that as a family we were realising very quickly that our time was short with Mum and it was difficult to see her passing, i spent’ the night before with her and the staff at the nursing home were great they discussed all aspects of care with us and we were very included and also cared for with kindness and it was homely there. Dad was with Mum when she passed away peacefully and i think that she would have wanted it that way. Naturally lots of tears were shed before she left us and since but i do not think that we could have done anymore for her, she knew that she could no longer go on and made up her mind to go and so i do not believe that myeloma had the last say! love to you and Slim take care and i so hope that all is well with you both San xxx

[sanParticipant]

Sorry to hear that you are feeling so low, you are wise to try another way forward,there will be another treatment plan for you and hopefully you will be in remission again soon, love to you and good luck tomorrow when you see your Consultant hang in there and be determined to get what you need! San xxxx

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