[sanParticipant]

thank you Ann for the info, great to hear that you had a great break 😎 San x

[sanParticipant]

Hi Eve so pleased to hear that Slim is better in himself and you have been able to get out and about:-) ahh Mum had a few months of remission with revlimid but she could only take 2 cycles before her liver was affected so it was stopped and her paraproteins came down but that was 4 months ago and now her pp's are 38 and rising, so we go back in a month to see what can be done either cdt or velcade, the Dr thought that velcade might be too harsh and wants to send her info re side effects so that she can decide before her next clinic appt, dear Mum is naturally not at all sure, so i hope that the clinical team can decide on a treatment regime soon, she is clearly not as well as she had been over the summer but we are thankful for having some respite from the chemo over the lovely summer but its not to be now and off we go again! thank you for asking after her,:-) sending love to you and Slim.
Helen sorry that you have had a really rough time, i would visit you if you lived nearby for sure ha! re friends, i always feel that there are unexpected friends who pull out the stops and those that you let you down at these times, its hard being at home when you are not well enough to do things that keep you busy. Good luck also with going back to work i really hope that it goes well for you when you are well enough.Take care Helen and look forward to a lovely Cornish holiday next year? 😀 love San x

[sanParticipant]

Hello Alpenator i so hope that you have reached remission:-) , when my Mum was in remission she continued to have zometa monthly and then saw the Consultant at a 3 monthly appt at that time bloods were taken to check the paraprotein level. The aches continued and she stayed on her pain control but certainly felt better in herself. Naturally if the paraprotein levels begin to rise then more treatment will be needed but i really hope that your remission is long, best wishes San xx

[sanParticipant]

Hi Eve and Sarah, well Eve you are such an inspiration 🙂 its so hard for everyone and really unless you are going through this with a loved one you just can't know how difficult it is dealing with the twists and turns of myeloma and the emotional ups and downs. Sarah, Eve is right enjoy Henrys remission 😎 and don't think too much beyond today, i send love and hope that Slim and Henry continue to remain stable San xx

[sanParticipant]

Hi Tom, all that i can say is that my Mum certainly has an achey feeling some days appear to be worse than others we wondered if it had anything to do with the monthly zometa as well as the damaged sites, so it may be something that unfortunately occurs :-S but after sct i have no knowledge of, guess that it might be another of those individual things?,sorry that i can't be more helpful, take care San x

[sanParticipant]

Hello Oliver, if you ring our lovely Myeloma uk nurse she will i am sure be able to advise you, it must be such a worry for you all and i really wish you well, San x

[sanParticipant]

Hello David, yes i do this and have raised a little for Myeloma uk so far via 'Give as you Live', its so easy and every little helps, best San:-) x

[sanParticipant]

Hi Angie, enjoy your girlie night on 18th 🙂 yes i agree your Mum would be so proud of you and thanks for keeping in touch with the forum its invaluable for us who are helping our loved ones with this illness. My Mum has MM and is in remission but we know that the dreaded can rear its head at any time again, Myeloma UK needs all the funds it can get and i too try to do a little bit through 'give as you live', love to you and enjoy your lovely garden, i know that this year my Mum has had loads of flowers from my garden grown just for her San xx

[sanParticipant]

Maureen i am so pleased for you 🙂 you will love retirement and just think of all of those great hobbies and having more energy for you and Ian, its is true as Eve said you will wonder how you ever had time for work, enjoy your time love San x

[sanParticipant]

Hello David so sorry to hear about your sister in law an awful shock for you both, love to you and your dear Wife at this difficult time San x

[sanParticipant]

Wonderful news, so pleased for you all 😀 stay well and happy, San x

[sanParticipant]

Hello Liz, i wondered if the liver specialist would know?, has your Sister's liver had enough time to recover fully? my Mum was in the same position but on Revlimid at the time fortunately after 2 cycles she went into remission and her liver has had time to heal, however when she relapses we may be in the same position again with the liver and chemo. Usually the chemo is given at a reduced dosage i understand when the liver is struggling but as you know by now everybody is so different in their response, please send my best to your Sister, i know how worried you and the family may feel, best wishes San x

[sanParticipant]

Dear David, so sorry to hear this 🙁 you are right to put pen to paper , lets hope that this resolves soon and that you start on the revlimid asap, sending you good wishes 🙂 San x

[sanParticipant]

Thank you Tom for the information, this is great 😀 San x

[sanParticipant]

Hi Andy, so pleased for you, great to hear that you are at home and through the rough bit of the op, hopefully you will recover well now San x

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