[sanParticipant]

Thank you David, yes i agree the empathy is wonderful 🙂 and as everybody is at different stages of illness or caring there is always somebody feeling able to give support and advice, gosh one day there will be treatments tailored for the individual that cure myeloma sufferers, and i agree it really it can't come quickly enough! love San x

[sanParticipant]

Hello David it was so good to hear about your recent holiday, and just like everybody else i so hope that you have many more fab holidays abroad and at home, Cornwall is beautiful 😎 too. I tell my Mum about the lovely people on this forum and so much of the advice i give her comes from here which helps take the fear of this illness from us all as we manage day to day living with uncertainty. I know that she is sad and scared and has bad days which she tries to hide from the family, but reading the entries here gives me strength and knowledge which i pass onto my Mum, she is currently in remission but i know that she worries about a future relapse, as her daughter i have changed and now know how to live for the day since the trauma after diagnosis and the last 6 months of helping with her care, but i am not the one with myeloma and see how hard it is for her to live for the day, this illness hits like a steam train and leaves the sufferer and families reeling, but good times are there too which are a surprise when they happen as for a time you think that normal life is never going to happen again! its great to hear that holidays and outings are doable for lots of people on here. Stay strong special people 😀 , love San x

[sanParticipant]

Hi Gill, hey you have your lovely dogs with you great 😀 it will be good to hear your news when you get back, love to you on your journey, sending good wishes, San x

[sanParticipant]

Hi Karen, so thrilled for you keep it up 🙂 lovely to hear your good news San xx

[sanParticipant]

Ahh Dai so hope that you feel better soon, a double whammy that you could do without, take care :-S San x

[sanParticipant]

Hi Andy, yes good luck for saturday hope that all goes well, San x

[sanParticipant]

Hello Apple, glad to hear that the Doctor is onto it, the ultrasound should happen quite quickly and then you can go on from there, i am sure that they will start chemo again as soon as they can but first things first, take care and hope that you feel better soon with the new medication, best wishes San x

[sanParticipant]

Hi Linda, just wanted to say that you are a real trooper, you have been great support to your Mum, particularly wanting to carry out her wishes through clear difficulties, she is at peace now thankfully, such a hard time for the family and we all react differently at these times of immense stress, but at the end of it all we just want to do what is best for our loved ones, great to hear the the hospital were so supportive too, love to you and take care of yourself now San x

[sanParticipant]

Hello Helen, good to hear your news you are doing really well 🙂 good to hear that you got to the concert, they may be older but clearly have still got it!! shame it can't be bottled for everybody! and yes your pic was lovely and very happy day by the looks of it ha! take care love San x

[sanParticipant]

Well done Maureen and Ian it all sounds very positive now, good to see the way forward after so much uncertainty, sending good wishes for your retirement and Ian's homecoming San x

[sanParticipant]

Max this is a difficult disease and it may be that simply Mum has an infection or electrolyte imbalance, bloods and urine may need to be taken, talk to her GP or specialist nurse, you can of course talk to dear Ellen or Maggie our lovely Myeloma nurses they can certainly help explain things to you best wishes San x

[sanParticipant]

Hello Carole, you will get through this 😉 its ok to have a damm good cry and then pick yourself up and battle on, sending good wishes San x

[sanParticipant]

Ahh everyone is different and so all might be well very soon, its just the not knowing that can cause more anxiety, you will know more on friday the best of luck with your consultation, glad to hear that you are getting about better today exercise will help i am sure,let us know how you get on, take care San x

[sanParticipant]

So sorry Mari, such a difficult time, sending love to you San x

[sanParticipant]

Hello Phil, all i can tell you is that my Mum had 2 cycles of RCD and her liver could not cope and so all drugs were stopped for many weeks, she had diurectics from the Gp as her feet became swollen and probably should not have as her potasium levels plumented and she had to take high doses orally at home which improved her situation and the diurectics were stopped, her liver improved, the liver specialist that she saw said that he expected her liver to fully recover he could not say how long this would take and naturally we were worried about her Myeloma and the need to continue her chemo at some stage, she was lucky as the chemo had knocked her pp's to 4 and she is currently ok and thought to be in remission, now that the liver is improving her feet are less puffy and she is more mobile and so this helps too but she pops her feet up when she sits down. So hopefully your liver will improve now but it takes time, they may change your treatment regime if the current chemo upset your liver and reduce the dosage of your drugs when they are restarted, the liver is a remarkable organ and will heal,so sorry about your holiday claim an added worry that you do not need at this time. Is there somebody who can take you to the hospital on friday you could get a wheelchair at the hospital i know that it is not great but at least you get to see the Dr best wishes San x

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