sandra barnett

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Viewing 15 posts - 121 through 135 (of 158 total)
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  • #102543

    san
    Participant

    Dear Christine and Chris, you are so right never give up!!, there will be something out there to help i am sure, keep pushing and i so hope that you find the best way forward soon, wish that i knew more in order to help out, love San

    #95251

    san
    Participant

    Hello Georgie, my mum has mm diagnosed 12 weeks ago and suffers greatly with fatigue, it is so hard because it takes every ounce of energy just to get washed and dressed, she said today to the rowcroft nurse that she so wants to do more, she is tearful at times and needs to talk it through, the nurse explained that the myeloma itself and the chemo will make you feel fatigued and low in mood there is a good booklet on fatigue and how to manage it by macmillan. She too had radiotherapy on her hip and has oxynorm for her pain which has been super in small regular doses, the chemo takes its toll on your body and mind, the pain is probably getting him down considerably, has he seen a palliative care nurse re his hip pain as the radiotherapy will take a little while before it helps the pain, to be without pain is a great thing or at least if it is more bearable for him he will be a little more mobile then hopefully. As Jill says the local rowcroft hospice is helpful and may offer complementary therapies which may help both of you. Please send you dear Dad my best wishes and i hope that things improve for him soon, San.

    #105276

    san
    Participant

    Ahh thank you Ellen, today Mum had an ultrasound abdomen but no gallstones or obstruction so as you say may be the liver itself, we are waiting to hear re the 4th cycle of revlimid, and as you mention maybe a short break and reduced dose, i will let you know as it may help somebody else in the future, poor Mum seems to be beset with problems nothing has been straightforward, but everybody's story is so unique, and thank you i may ring the infoline if things get more confusing,i am so thankful of this forum San

    #102517

    san
    Participant

    Dear Helen, sorry to hear that you are having some difficult side effects, and Dai hope that all goes well on your regime too, my Mum was seen in clinic today her protein is down from 1000 to 11 the Consultant said, so the RCD is doing its work she has had 3 cycles so far but we are waiting for todays bloods as she is still a bit jaundiced so not sure what is going on there either but we will see, she does'nt feel well though so fatigued still, take care all San xx

    #102502

    san
    Participant

    Well Helen, i have heard that its not always sunny but i don't believe it!, we love Sennen and have been lucky when we go too, its a smashing county, but last week here in Devon it was lovely too so can't complain, wishing you a super warm summer in Northumberland, take care, love San

    #102496

    san
    Participant

    Hi Ali, yes it is torture for our Mums waiting around at clinic, this is not a kind illness and every day something seems to crop up, sadly i am waiting for a bit of light at the end of this tunnel for Mum but so far its one step forward and two back! still not sure why the jaundice, bloods have been taken and we will see on monday when we see the consultant, a bit worrying not knowing and guess that more chemo is out for the time being. Hope that your Mum is ok send her my best take care San x

    #102500

    san
    Participant

    Hi Helen, glad that you had good weather, its always sunny in cornwall ha! hope that you feel better after your hol, San x

    #87604

    san
    Participant

    I am so sorry Hawkeye, love to you at this sad time, San xx

    #87612

    san
    Participant

    So sorry to hear your sad news, i do hope that you find answers to your questions soon, and wish you all the best with your run, San.

    #102494

    san
    Participant

    Hi Ali, well i am off to clinic on monday with my Mum as she too is on the revlimid trial and i will quiz on this too as Mum needs to make and informed choice, i too read this recently, my Mum is jaundiced at the moment and clearly something is going on maybe a drug reaction but they are going to ultrasound her abdomen, gosh know what you mean about a roller coaster!! nothing is simple with this illness, 3 hours in clinic today and the same on monday!! and poor Mum is so fatigued its a huge effort for her to go, i will let you know what they say at the hospital to my Mum, best wishes San.

    #107101

    san
    Participant

    Ahh dear of you, its hard and the drugs may make you feel emotional as well as this illness, but on here you will meet some great folk who have been through it all and their stories are inspiring and practical and may give you heart, take care and just look after you health best wishes to you and your family, San.

    #107099

    san
    Participant

    Ahh good luck Richard, i am sure that they will keep a close eye on you, take care and so hope that this works for you San.

    #95191

    san
    Participant

    Hi Jill, sorry to here that Mum is low in her mood at times the dex makes my Mum teary and just the whole experience really, all the we can do is listen, give love and be patient, however there are counsellors who could help, they are attached to the service and sometimes its easier for our loved ones to talk to somebody else, this might be helpful for your Mum?, i know that my Mum was offered this in hospital recently, best wishes San xxx

    #94993

    san
    Participant

    Hi Helen still sunny here!! maybe cloudy saturday then good they say so enjoy, anyway you will have fun whatever the weather i am sure, happy for you re your back not being MM and just a slipped disk hope that you feel better today, take care San xx

    #95189

    san
    Participant

    Hi all you are all so inspiring to me and i pass this on to Mum who has come home and is doing well with Dad who is so supportive of her and he was one who shunned illness so its been hard for him too. They to are considering and cleaner and having someone to do a bit of gardening, and it great if the person coming in is a cheerful, wishing you all a lovely weekend with good weather too San xxx

Viewing 15 posts - 121 through 135 (of 158 total)