sandie58 started the topic Mums's MM and now has breast cancer!. in the forum General 11 years, 1 month ago
Can't believe what has happened now. Mum has just re-started her Cyclo. regime having had to stop after developing sepsis after taking the first two courses. She has just taken her second dose of 10 tabs and we will be a bit on edge when it comes to next week as that is when her white blood cell count went down before. Still, she is now on…[Read more]
sandie58 replied to the topic Full Remission in the forum Treatment 11 years, 1 month ago
Great news Peter. Have a lovely Easter.
Sandie x
sandie58 replied to the topic Secondary Cancer in the forum Related conditions 11 years, 1 month ago
Dear Gill. I am so sorry to hear about Stephen. I didn't notice the date and you are right I hadn't read all the posts. What can I say apart from I am very sorry. I hope you are coping. Take care. Love Sandie x
sandie58 replied to the topic Mum developed Sepsis after just two courses of chemo! in the forum General 11 years, 1 month ago
Hi Jill, hope your mum is doing well now. How is she with her current treatment and has she seen her Consultant for results yet. I hope her MM levels have come down. I posted in the treatment forum as well so you have probably picked up my news on mum's breast lump. We are meant to be going for results on Monday, although everyone says this is…[Read more]
sandie58 replied to the topic Risk of ONJ when on bisphosphonates in the forum Treatment 11 years, 1 month ago
Thanks for posting this Peter. I may be put on Bisphosphonates not because of Myeloma (although my PP levels are 7.9 and are creeping up everytime I see the Consultant). I am being tested for Osteoporosis as I have fractured a vertebrae. My Haemo. did check my MRI scan and confirmed it was nothing to do with Myeloma. I am very concerned after…[Read more]
sandie58 replied to the topic Secondary Cancer in the forum Related conditions 11 years, 1 month ago
Hi Gill
Very sorry to hear Stephen may have a secondary cancer. My mum is 87 and has been on chemo for just a month. She had an MRI scan because she has bone lesions and this picked up something in her breast. Hence we went off to the breast clinic and they were just cysts, but the mammo showed a lump in her other breast which they were concerned…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 1 month ago
Hi Dai & Jill.
I think the reason why mum's Consultant said drink 1 1/2 litres, is because she has two heart murmurs and poor circulation, hence the swollen legs and ankles. I think he felt that to drink more would put extra strain on her heart. I agree with you, I think the 'sicky' feeling is down to the chemo and not Clasteon, and I think mum…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Jill. Been meaning to reply today but had the BT engineer in for the afternoon updating my broadband. Thanks for letting me know about Dex. Mum was worried about weight gain as she is already quite 'round' to put it nicely. I would rather her be plump than thin though as she looks healthy and pretty, and at least if she is ill has some…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Tom.
Mum saw Haemo. Consultant yesterday and she is continuing with her Amoxicillan until Monday and then he is putting her on maintenance Penicillin of 250mg twice day for the duration. Makes sense as hopefully this will prevent further infections. She had only managed two weeks of chemo and her blood test showed that her PP levels had gone…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Tom. Well had results back and thankfully not connected with Myeloma. I would have been a bit shocked if it had been as my PP levels are only 7.9. Because Mum has MM, the Consultant was just being careful. However, I'm now being tested for Osteoporosis as one of my vertebrae had fractured which is not good news! This all happened after a bad…[Read more]
sandie58 replied to the topic Mum developed Sepsis after just two courses of chemo! in the forum General 11 years, 2 months ago
Hello Jill. Have had a bit of a time of it. The District Nurses were lovely and came out three times a day to do the intravenous antibiotics. Mum was given 3g a day so double the usual strength of oral. She had this for a week and on Monday we went back to the hospital for another blood test. Spent four hours waiting around and then saw a junior…[Read more]
sandie58 replied to the topic Mum developed Sepsis after just two courses of chemo! in the forum General 11 years, 2 months ago
Thanks for your good wishes Tom. Hopefully when end next week comes things will be a bit more settled again and mum can continue treatment.
Love Sandiex
sandie58 started the topic Mum developed Sepsis after just two courses of chemo!. in the forum General 11 years, 2 months ago
Hello everyone. Have had a very stressful few days. Mum was doing fine up to last Wednesday when her doctor asked to see her for a chat. He wanted to make sure we had all the information to do with Myeloma, and I told him we knew exactly what was going on. Then he read the end of the Consultant's letter that said the MRI had picked up some lesions…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Jill. Have had a very stressful few days. Mum was doing fine up to last Wednesday when her doctor asked to see her for a chat. He wanted to make sure we had all the information to do with Myeloma, and I told him we knew exactly what was going on. Then he read the end of the Consultant's letter that said the MRI had picked up some lesions in the…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Jill. Just spoken with mum and she is feeling better today. She takes 10 of the Cyclo once a day every week, so same as your mum 500mg total.Last Thursday was her second dose, so couple of free days before she takes the next lot. The Consultant gave mum Domperidone rather than Metoclopramide, but I think they both work by emptying out the…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Mavis
Have you had any problems with using Zometa? I've just read about someone getting osteocronosis in his jaw. Can't understand why anyone would get this when the meds are meant to strengthen the bones! I nearly always manage to go with mum on her appointments, just keeping away if I am ill, but other family are on hand to take her. It must…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hello Tom. I have had my MRI scan and am awaiting results. Mum has taken her second lot of chemo tabs and has felt a bit sicky this time around. Still not sure if it is chemo or the Clasteon tabs. I've suggested she take Domperidone three times today just to see if they work for her. Previously she had only been taking one or two as she has to…[Read more]
sandie58 replied to the topic LUMBAR KYPHOPLASTY in the forum General 11 years, 2 months ago
Dear Jaqui. I am so sorry to hear about Glenn. I was just reading through his posts from last year which sounded as if he was on the right track. No comments will make you feel any better, but know that there are many others out hear who are either affected by MM or close to family members who are going through the same route. We can all feel for…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi. Thanks for letting me know about the infusions. We did think mum was going on Bonefos but when we collected the meds. it was Clasteon tabs. The nurse did mention the acupressure sickness bands and I must admit I had forgotten about them (bad memory, sign or getting old I guess). We're going to the shops tomorrow so will buy them and give them…[Read more]
sandie58 replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 2 months ago
Hi Jill. Thanks for letting me know about Zometa. Once every four weeks sounds much better. Four times a week would rule your life! We'll face that if they suggest it, but as mums lesions are small at present I think they're opting for an easier medication for mum to deal with. Like your mum, mine has perms and has always complained that they…[Read more]