SandieHuskinson-Rolfe

  • It’s a long time since I have posted on this forum. Sadly I lost my beautiful mum on the 17 December 2014. Poor mum had so many things wrong with her but to look at her you would never know. I still don’t understand what went wrong and am finding this time of year so difficult to cope with. My mum went into hospital for a couple of weeks before…[Read more]

  • Hello, sorry to hear about your Aunty. My mum is 88 and had been seeing the haemo team for several years before diagnosed with MM early last year. Luckily my mum hasn’t had any breaks although she did have three lesions in femur, spine and collarbone. There is no reason to fear going on chemo. My mum was just given chemo tablets which she took on…[Read more]

  • Hi Nick
    My mum is 88 nearly 89 now. She has been seen by the Haemo team for several years as it was picked up early that she had abnormal PP levels. Then at the beginning of last year they decided that the MM was now active and time to start some treatment. Because of her age she was just put on Cyclophosphomide (chemo tabs). These didn’t reduce…[Read more]

  • sandie58 posted an update 9 years, 7 months ago

    Hi everyone. Haven’t been on this site for quite some time. I don’t know where this year has gone!. I had thought it would be a good year for mum as her Para Protein levels had dropped to 7 last year and she came off all treatment, however as mum has so many other health issues, osteo arthritis, breast cancer, heart failure, renal failure stage 4,…[Read more]

  • Hi Jan
    I have just read your profile. Sounds awful what happened to you when your three vertebrae collapsed overnight. How frightening to know this can happen when sleeping. I can somewhat sympathise as I had a wedge fracture occur after Christmas. I was doing a lot of coughing although I think I had the weakness there for several years, as every…[Read more]

  • Hi Vicki and Colin. Thanks for your kind wishes. Hoping that next time it won't be such a bad experience for my mum. We will be prepared and I will stay over this time. I couldn't last time as I was fighting a cold virus and the last thing mum needs is a cold. Thankfully she hasn't had one for over four years!! I hope Colin is doing well.
    Love…

  • Thanks Jo.
    From what I have been told the Zometa should get better as time goes on. I'm hoping the next dose won't make mum so ill, and I think if she is still anaemic they will also give her some blood next time. Hope you are doing well.
    Love Sandie x

  • Thanks Jan.
    It's useful feedback to give my mum. As long as she knows that the side effects she is experiencing are normal she will be able to cope. She only really had one weepy day last week whilst feeling poorly and then she bucked up after three/four days. The days pass so quickly and seem to be full of what and when to take her tablets (she…[Read more]

  • sandie58 replied to the topic 2 weeks in hospital in the forum General 11 years ago

    Hi Jo
    So glad you have recovered from your bout of pneumonia. God bless Penicillin. What would we do without it. When mum got her sepsis she was resistant to two types of ant. but IV Amoxicillin did the trick.
    Hope your treatment continues to work magic. Great that your PP's are 4!
    Love Sandiex

  • Hello everyone. Wondered if anyone could let me know what effects they had from Zometa infusion. Mum had her first one on the 15 April, along with her Cyclo, DEX (1st time used), plus meds for breast cancer. She was ok the next day and for three quarters of the third day and then started to feel ill with a vengence. Lots of pain in her bones and…[Read more]

  • sandie58 replied to the topic Being Thankful! in the forum General 11 years ago

    Hi Mavis
    So glad to hear you are in remission now. You deserve a good period of time, and I hope you get to go on your holiday.
    Love Sandiex

  • sandie58 replied to the topic Zometa 'flu' in the forum Side-effects 11 years ago

    Hi Dai
    Sorry to hear about Zometa flu and hope you will soon feel better. My mum had her first infusion on Monday, along with her normal Cyclo, DEX, and a breast cancer medication. She felt great on Tuesday (doc said she would!) but started to feel unwell yesterday and had really bad pains in her back going through to her chest. Trouble is she…[Read more]

  • sandie58 replied to the topic Anti Biotics in the forum General 11 years ago

    Hi Tom
    Sorry to hear you've been poorly, but glad you're on the mend now. Tried to get my other half to get a onesie, but he refuses, mind you he doesn't wear jammies either;-). Let's hope we get some warm sun soon as I'm sure all this cold weather isn't helping everyone on the board complaining about chest infections. Since my mums sepsis and…[Read more]

  • sandie58 replied to the topic Revlimid Question in the forum Treatment 11 years ago

    Hi Jill
    Sorry to hear that your mum has had to have another transfusion, and I hope she is feeling better now, and wish her well with this next round of treatment. Like your mum, my mum isn't getting out very much at the moment and whilst too may hospital appointments make her fed up, I don't think she really minds as everyone is so nice. My…[Read more]

  • Hi Jane
    Just spoken with mum today and she's feeling less tired and not so sicky, so that's good news. 🙂 It's been three weeks since she had her breast biopsy and the lump area is still painful which is a bit worrying. Think I'll speak with her breast care nurse tomorrow for advice. She starts taking her breast meds tomorrow, so on top of chemo…[Read more]

  • sandie58 replied to the topic Revlimid Question in the forum Treatment 11 years ago

    Hi Jill
    Haven't spoken for a while, but I am glad to hear your mum is doing so well on her treatment. I hope she continues to get better and better.
    Take care.
    love Sandie x:-)

  • Hi Jane
    Thanks for your best wishes. It's like 'how much more can God throw at you'. In saying all that mum is handling her illness/ess very well. Had a bad week last week as she felt sicky and tired. Trouble is as well as the cancer she is 87, and on lots of other meds which all add to her tiredness. Still, she hasn't had any more infections…[Read more]

  • Hi Tom. Sorry not to have got back to you earlier. Mum is doing fine on her chemo at the moment, although last week she had a 'sicky, tired week'.:-S Hoping that this week she will feel better. Took her third course of Cyclo. yesterday and we go back for results on the 15th, and she will have her first infusion of Zometa. With regards to the…[Read more]

  • Hi Jean
    Thanks for your best wishes. There are four grades, one being the least invasive so we are thankful for that at least. I had a bad feeling when they got the results back so quickly (which just goes to prove they can. Test done Wednesday afternoon and results back by following Monday afternoon). The news could have been a lot worse though…[Read more]

  • Thanks Mavis. I think there must be someone up there who is giving us strength as we are not stressing out after the news. Just taking things day by day and hoping that everything will just be contained and hopefully the lump will get smaller with treatment. It is quite large at 28mm and once mum starts on Tamoxifen (or alternative), we've been…[Read more]

  • Load More