SandieHuskinson-Rolfe

  • sandie58 replied to the topic Bone marrow biopsy in the forum General 14 years, 6 months ago

    Hi Sharon
    I am so sorry you experienced such a painful time. I hope you had someone with you for support. If they had hurt my mum I would have had a right go at them. She was very calm and a good patient, but had she felt pain she would have stopped them, and would never have had the procedure repeated. We told them that before they started so…[Read more]

  • sandie58 replied to the topic Bone marrow biopsy in the forum General 14 years, 6 months ago

    Thanks Bridget
    If she ever has to have it done again I think we would ask for the same doctor. He obviously did listen to her and ensured that enough local was put in place so she didn't feel anything. Just goes to prove that it needn't ever be painful, and I feel sorry for anyone out there who has had a bad time. To all of you, make sure you…[Read more]

  • sandie58 replied to the topic Bone marrow biopsy in the forum General 14 years, 6 months ago

    Thanks Nettie
    I agree, I think we did the right thing in having a go before they even started. It obvously scared the one doctor who then got his more qualified colleague to do the procedure. In fact we had seen that doctor before in the clinic.
    Power to the patients I say!!!
    Best wishes.
    Sandie

  • Hi everyone out there and a Happy New Year!

    Just thought I would write an update about my mum which I thought may cheer up anyone about to go ahead with the same procedure. My mum had her first bone marrow biopsy last week at Princess Alexandra Hospital in Harlow. She was quite worried as she had heard that it could be painful, and I already…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi Mavis
    I don't quite understand. When my mums protein level was 11 they said that if it increased at a slow rate she would get to a 100 before needing treatment, and yours is 10. At that level they were still saying nothing to worry about. It was only when it jumped from 20-30 in 3 months that they were concerned. I would have thought that at…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Thanks for your best wishes Tom. Mum isn't letting the news bother her at present. We'll wait and see what the consultant decides in February.
    Have just written my doctors follow up appointment results to Jill above. Not going to let the results bother me until I hear back from the Consultant. I guess if he wants to see me perhaps then I will…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi Jill
    Definitely will ask for sedation. Mum is very 'plump' around her stomach and hip area so I guess they will have the same problem. Mum does have a heart murmer which is stable at present, and also she is on tablets to keep her pulse rate steady as well as tabs for high blood pressure. She sometimes ends up in hopsital when her pulse rate…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi Gill
    I will insist that they give my mum sedation. I think she may refuse otherwise. Would I be able to stay with mum when she has it?
    It's really strange, when the consultant told us both it definitely was Myeloma now, we were both really calm and just asked questions. I guess it wasn't a shock as it had been coming on over the past couple…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Many thanks. Nothing will happen for 3 months anyway, so we'll face it when the time comes.

    Have a lovely Christmas.
    Best wishes.
    Sandie

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi Bridget
    I don't think I'll tell mum it will be too painful, although she's not daft and is expecting it. As long as she can be sedated. In fact I will insist that she is, although I guess you're not put right out??
    I'm hoping it will be a really special wedding at a lovely venue. Not sure mum will be able to make it up the stairs to the…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi David
    Thanks for your best wishes. Mum is 85 soon and we are taking her out for a family meal. Every year that passes is very precious as I lost my dad to cancer at 70 and my sister in her 40's.
    We will make sure Christmas is a good one this year and the family wedding on New Years Eve with most of the family will be a one off as we don't all…[Read more]

  • sandie58 replied to the topic Mums diagnosis in the forum Newcomers 14 years, 8 months ago

    Hi
    Thanks so much for the info. I will tell my mum as I'm sure it will make her feel better. Seems strange that at the last appointment the head consultant finally said she now had Myeloma, but would wait for another three months before he decided on treatment. Doesn't bother my mum as at least she can have Christmas and the family wedding to…[Read more]

  • sandie58 started the topic Mums diagnosis. in the forum Newcomers 14 years, 8 months ago

    Hi everyone
    Originally posted on the other site and this is my first follow up on this one. Have changed sign on name slightly, so not sure how this will appear.
    Last time I posted I told you that mum (84) had been suffering with high protein levels for the past couple of years, but in the past few months the bad protein had increased enough for…[Read more]