Dear Jean
You don't look a day over 45 yourself, and I'd have just flaunted a toy boy if I had one, or pretended !! Hmm now I come to think of it I married a younger man any way…….. I enjoyed the Bond movie very much, better than the last one.
Love Helen

Dear David, Jo, Jean, Peter, Sue and all
I totally agree, someone always comes up with little nuggets of golden help when you need them most, have a really good Christmas every one
Love Helen

Thanks very much Jean and Megan, some times it feels a bit mean talking about good news when there are so many others just coming to terms with the diagnosis, treatment or relapse. But I suppose we should be balanced, and remission is what we all hope for, for as long as possible. I went to see The Hobbit tonight and need to see the next 2…[Read more]

Dear Dai
Really hope you have a good birthday and Christmas Dai and continue to improve. Love Helen

Hi Andy
Sorry we aren't getting together this week, I go for the Zometa and clinic tomorrow, I'm glad you seem ok perhaps we could get together in the New Year?
Love Helen

Dear Jean
I've just read what Dai wrote on here a few days ago and can't add anything to that, I took 11 months to feel normal after my SCT, it is a terribly slow recovery sometimes. Now I'm able to do so much more but I did think I'd never get to this point. I felt really well for a couple of weeks after my harvest settled down too so it sounds…[Read more]

Hmm, oh dear it's not easy is it? It's a good job you were there! How is your mum today?
Love Helen

Phew, good news Wendy, now relax and take time to enjoy that Merry Christmas you probably haven't had time to prepare for yet?
Love Helen

BH Sandra, you mean to say you've been going on with a fractured hip all this time, glad to hear its healing up and hope your mobility is improving and that your blood tests were goood

Wendy x

Hi Jo

I dont think it was my post you read on facebook as I dont have paraproteins but see my recent update – its still good news!

Hi all
well I am very pleased to report that according to the radiologist in the multi disciplinary haematology team that reviewed my xrays, apparently there is no difference in the recent xray of my pelvis to the xray taken of my pelvis on diagnosis, the implication being that the recent xray shows old damage, not new damage caused by the return…[Read more]

Hi Emma
2 things, if mouthwash stings ,and is her tongue very red? with white patches? If so I'd very tactfully suggest your mum has mouth swabs taken, could be thrush, very common on high dose dex, then she needs correct treatment . Soon or she wont feel like drinking if her mouth gets too sore. Try not to get too het up about the ward, it's…[Read more]

Dear Emma
Good to hear your mum is not confined to bed, that wouldn't be easy to endure. I hope you don't have too far to travel to visit her and that the weather stays kind to you. Love Helen

Hi Blue
welcome to the forum, shame about your relapse. I understand that with the donor transplant if its a reduced intensity one you dont get the same side effects because you are not getting the chemotherapy that causes it. I did a bit of research into it because I was recommended to have one but in the end they couldnt find a fully matched…[Read more]

Great news Michele, good to hear you are doing so well after your transplant, have a great xmas, Im sure you will with that news!

Wendy

Hi Wendy
I have my fingers and everything else crossed that all is ok, like you any little pain is a worry, I don't know what is serious any more! Let us know how you get on, hope it is nothing major.
Love Helen

Hi Tom

Sorry that you have to start treatment, you will see from all the replies that everyone responds differently to the treatment, has different side effects and the SCT. I had a tough time on treatment which included two cycles of PAD and seemed to be ultra sensitive to everything but I continued to work part time throughout.
My employer…[Read more]

Dear Dai
I can't really contribute anything to this thread – other than I am reading it with interest. However, as I've not spoken to you for a while I just thought I'd say hello, offer the usual seasonal greetings, hope your treatment plan goes well, is there a tentative start date? …….and send you a photo of my half decorated christmas tree…[Read more]