[satelliteParticipant]

Thank you Tony.
I’m glad you are getting back to how you used to be, and long may it continue.
I agree, I’ve learnt over the years, it is important to manage your expectations.
Take care
Sian

[satelliteParticipant]

Thank you Rich.

[satelliteParticipant]

Hello all
Well I’ve had my first appointment with a very nice Consultant with the relevant tests, bloods etc.
Although not all the blood tests have come back, he told me the results of my MRI was severe inflammation of the hip joint, so no signs of cancer or anything sinister.
He will wait until the rest of my bloods are back before deciding whether to do a CT Scan, but he said he’s 95% sure the raised blood tests are to do with my RA, not a blood cancer.
I was very relieved to hear that.
Best wishes to everyone on here and thank you so much for your support.
God bless you all.
Sian x

• This reply was modified 2 years ago by  satellite.

[satelliteParticipant]

Hello all
Just wanted to wish you a happy Easter.
No real update. I had my MRI, no news yet, so hopefully that’s a good sign?
My hip continues to be very painful, I’m walking with a stick now, tired, and when walking my dog I’ve noticed I’m getting a bit breathless.
Roll on May 5, to put my mind at ease one way or another.
Take care to you all here, and best wishes.
Sian x

[satelliteParticipant]

Hi
Thanks for keeping in touch.
I have my MRI with contrast tomorrow for my hip (hospital are apparently outsourcing all their outpatients to private facilities, as they are so snowed under), it’s quite painful at the moment, and aches at night, so hopefully I’ll know what’s happening there soon. Haematology 5/5, so still a bit of a wait, but we’ll see.
I’m sleeping quite well at the moment thanks, I’m very fatigued and tired, but trying not to worry unduly.
👍
That’s great MacMillan sorted Counselling for you, we do a lot of fundraising for them at work, such an amazing charity.
Sian

• This reply was modified 2 years, 1 month ago by  satellite.
• This reply was modified 2 years, 1 month ago by  satellite.

[satelliteParticipant]

Hello, thank you, everyone on this forum is so kind.
Unfortunately my appointment has now been put back until 5 May, I was upset, but seems like the hospital is snowed under. My Rheumatologist asked for an MRI of my hip first week in January, I’m still waiting sadly.
Kind regards to everyone on here.

• This reply was modified 2 years, 1 month ago by  satellite.

[satelliteParticipant]

Thank you, I’ll check out the Headspace App.
Thank you all for your kind thoughts

[satelliteParticipant]

Thank you, I’m trying not to worry. Being at work helps, I can kind of switch off.
👍

[satelliteParticipant]

Hello
Thank you for your kind thoughts and information.
It was my Rheumatologist who first noticed the increase in my ESR. She’s been monitoring it since last October when I last had my RA flare. She’s looked for maybe Lupus, PMR and all sorts of other autoimmune conditions. She checked my immunoglobulins and also serum electrophoresis which was apparently normal at the time (December). But despite my RA being fine with an increase of Methotrexate 🤞 my ESR has gone up again to 124. I have to say I’ve had very good care from my Rheumatologist, she is very vigilant, otherwise the increase in ESR might have gone unnoticed.
So I’ll wait now until 21 April when I’m seeing Haematology.
Thank you once again for all your information on here and I’ll keep you posted.
Best wishes to all on this forum.

• This reply was modified 2 years, 2 months ago by  satellite.

[satelliteParticipant]

Thank you for your reply. It’s a worry, but there’s not much I can do until I have my appointment I suppose. It’s easy to ignore it when I’m at work, but at night it’s playing on my mind.
Hopefully it’s nothing serious, but just the referral alone scares me.
Take care everyone on here, I’ll keep you posted on what happens.

[Author]

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