vanessakelly

  • Thank you Peter for your reply. I have such admiration for everyone having to personally deal with cancer, I’m just a wife and feel like a spectator. Even in remission its there, but you’ve helped put my mind at rest until Stewart gets new results. You didn’t have to do this for me, so I’m really very grateful. X

  • Stewart had his bloods taken and his consultant sent along a letter asking him to repeat fbc, creatinine, u&e , folate etc. in the letter he stated there’s no raise in PP’s however Stewart is “slightly anaemic”. He’s been in partially remission for two years now since SCT.
    On this basis Stewart has not re arranged the new tests until next week,…[Read more]

  • sessakelly replied to the topic Work in the forum General 8 years, 11 months ago

    Hi Emma,
    Sorry to hear your story. Unfortunately I have some experience of less than sympathetic employers. I was diagnosed in September 2012. Usual CDT before stem cell transplant the following April. Made redundant on my return to work in June having worked from hospital during the STC and having taken no time off during the initial treatment…[Read more]

  • Thanks ladies I really appreciate your advice. I will call the nurses tomorrow and maybe try to worry less. I’m probably driving Stewart crazy!
    So grateful to you both

    Vanessa

  • Haven’t written on page for the longest time but once again we need advice and help. Stewart’s on 3 monthly checks now and the latest one seemed to indicate that his pps have gone down from 16 to 13 . It’s been nearly two years since his SCT so this is remarkable? But he’s been feeling rotten since November with colds and viruses and infections…[Read more]

  • Stewart has been offered a new job, thankfully for his peace of mind- he needs to be busy and felt he had let us down. Although I’m worried (because I constantly worry these days) one of my concerns is that we never divulged his cancer diagnosis. Stewart was made redundant from last job, we believe on this basis although were unable to prove this…[Read more]

  • Vicks and Ellen, I really appreciate your replies. So much to consider. In Stewarts case he's now got bilateral Pe's and osteonecrosis of the jaw. He's been in hospital five times now over the course of his CDT and we're both so anxious about his SCT because if there's a complication to get Stewart seems to get it!!
    He's only 45 and I just…[Read more]

  • Hi,

    Unfortunately today the dentist said Stewart has osteonecrosis of jaw either due to steroids or zometa, of course this is devastating considering Stewart came out of hospital yesterday with a diagnosis of bilateral PE due to thalidomide.
    If its not one thing it's another, and he's really beginning to question his route forward I.e. SCT.…[Read more]

  • I understand in principle the differences between both and the pros and cons,however I dont understand why some people are offered a mini Allogenic transplant after Autologous. Is it just down to the consultant? Or is there evidence a mini works or not ?
    Can anyone help me on this, just so I can stop mulling it over and over. Please

    Always in…[Read more]

  • Dai,
    You answered questions I hadn't yet asked but had on my mind! So informative and explanatory thank you so much. I feel both Stewart and I were flying blind and relied on just his consultant who really isn't that forthcoming.
    I can't fault nhs treatment (Stewart wouldn't have a bad word against the Western General Edinburgh) but oh to be…[Read more]

  • Phil, thank you so much for taking the time to fill me in on your journey. It seems not too unlike Stewart's, and hopefully he will go into remission as you have. It's great to hear you're back enjoying life also, Stewart is very low sometimes because he can't go running, play football golf etc anymore, it was his release. Now all he has is me…[Read more]

  • Janey can I ask ,did you have maintenance treatment?

    Yours
    Vanessa

  • Janey your message has brought me new hope. Last night I slept for the first time in ages and I stopped trawling the Internet for miracles. At least for the moment…..

    So grateful

    Vanessa

  • Andy ,you've been through the mill. I'm lost for words that you would take the time to explain treatment pros and cons. I really appreciate it. I wish you the very best, and that what you hope for comes true.

    Eve, once again I'm humbled that people have taken the time to recount their experiences and so positively. I'm very glad to hear your…[Read more]

  • Thanks Vicki for your advice, I really appreciate it. Im finding it hard to talk to friends and family as they just say things like " let's pray they find a cure blah blah " I understand they are trying to comfort us but when Stewart hears it , it makes him mad,whereas I just get overwhelmingly sad.Id love still to find out whether Stewart has…[Read more]

  • Hi
    This is the first time I've written but I read the discussions lots, they bring me some hope. My husband has mm. He was diagnosed a few days before I gave birth to our beautiful four month old baby girl Elsie. I'm heart broken in a word. I'm mad and sad combined and its not getting any easier. Last week Stewart had final bloods taken he's on…[Read more]