[sessakellyParticipant]

Dai,
You answered questions I hadn't yet asked but had on my mind! So informative and explanatory thank you so much. I feel both Stewart and I were flying blind and relied on just his consultant who really isn't that forthcoming.
I can't fault nhs treatment (Stewart wouldn't have a bad word against the Western General Edinburgh) but oh to be rich and see what other treatments were available, particularly in the US.
Dai, I have to say you're inspirational and it's people like yourself that help others stay strong along the MM treatment journey.
Long may it last

Vanessa

[sessakellyParticipant]

Phil, thank you so much for taking the time to fill me in on your journey. It seems not too unlike Stewart's, and hopefully he will go into remission as you have. It's great to hear you're back enjoying life also, Stewart is very low sometimes because he can't go running, play football golf etc anymore, it was his release. Now all he has is me nagging him!!!
Thanks again Phil, I hope the best for you and those you love.

Vanessa

[sessakellyParticipant]

Janey can I ask ,did you have maintenance treatment?

Yours
Vanessa

[sessakellyParticipant]

Janey your message has brought me new hope. Last night I slept for the first time in ages and I stopped trawling the Internet for miracles. At least for the moment…..

So grateful

Vanessa

[sessakellyParticipant]

Andy ,you've been through the mill. I'm lost for words that you would take the time to explain treatment pros and cons. I really appreciate it. I wish you the very best, and that what you hope for comes true.

Eve, once again I'm humbled that people have taken the time to recount their experiences and so positively. I'm very glad to hear your hubby is keeping relatively well post SCT.. Stewart finishes induction in a week then the pre sct roller coaster starts on 18th Feb with a view to transplant in March . I don't know if the Dr feels it best not to leave time between induction and SCT? Is your husband on maintenance treatment?

Again, so thankful for hope given

Vanessa

[sessakellyParticipant]

Thanks Vicki for your advice, I really appreciate it. Im finding it hard to talk to friends and family as they just say things like " let's pray they find a cure blah blah " I understand they are trying to comfort us but when Stewart hears it , it makes him mad,whereas I just get overwhelmingly sad.Id love still to find out whether Stewart has other options prior to sct which could give him longer remission. He is young and fit and doesn't appear to have problems with bones or kidneys yet. When they stumbled on his myeloma his pp's were 64 so it is a big drop I know. From following these forums though most people seem to reach single digits or zero before sct
Vicki, I don't know if this mad/sad emotion will ever leave. All I know is that I will fight tooth and nail to ensure Stewart gets the best treatment going, but at the same time I need to respect what he wants. If you ever need to vent as I have, then I'm here. Elsie is the spit of her daddy, I'm very lucky.
Again, thanks for response, if others out there have any more info I'd appreciate it. I will of course pester Dr roddy again on the topic.

Theres always hope
Vanessa

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