tom and Mikejanulewicz are now friends 6 years ago
tom posted an update 6 years ago
@andyg oh oh am in I remembered it…..eventually lol….
Debs replied to the topic The Perfect Pair in aid of Myeloma UK – in Kidderminster, Worcestershire in the forum Off topic 7 years, 7 months ago
Sounds great Adrian….every bit we can all do is really great.
Hope the SCT goes well for you – Take it easy afterwards, listen to your body and don’t overdo it! Fundraising can all wait 🙂
Deb x
Debs changed their profile picture 7 years, 7 months ago
Debs started the topic The Perfect Pair in aid of Myeloma UK – in Kidderminster, Worcestershire in the forum Off topic 7 years, 7 months ago
I just wanted to let everyone know about an event that I am running in a couple of weeks – it would be fantastic if some of you might like to attend!
The Perfect Pair is a wine tasting event with a difference…and we hope that you or your friends/ business colleagues might want to get involved. The event is being run by me, Deb Gascoyne, and I’m a…[Read more]
Debs started the topic Goodbye to the lovely Sandra in the forum End of Life and Grief 9 years, 1 month ago
Hi everyone. I haven’t been on this site for a long time now (more of a fb person), but I have been asked to let people know that sadly Sandra Lodwick, an old-timer (at only 50) on this site, sadly passed away yesterday.
Sandra, passed away peacefully last night and Bruce, her husband has asked me to let people know. Sandra was positive in her…[Read more]
Debs started the topic Small things lead to big things! in the forum Off topic 10 years, 3 months ago
Hoping that some of you might think about helping me out? I know my fundraising posts are often passed on here, but I’m not asking for money…just support!
I got diagnosed in 2009 with myeloma and am lucky to be 3 years in remission post SCT.
To celebrate I am using my 40th year to raise awareness and money for Myeloma UK by doing a ’40 C…[Read more]
Debs replied to the topic Is somebody trying to kill me? in the forum Off topic 10 years, 3 months ago
Hi David. THat is not good news. Although Maureen is right that revlimid has been said to have a tiny chance of increasing the risk of secondary cancer, skin cancer being one of the ones that it is more likely to do this with. That said, I have always said that whilst there is a chance of that, I’ll take that chance given the benefits it offers.…[Read more]
tom replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Hi David and all you others.
Yep am still here lol, and I wasnt an SCN ha ha.
Hope your doing good David as we are at this sunny end 🙂 yes as Jean says bloods taken last Friday and results today:-)
Bit of an update on me seen as am on the forum.
Myeloma came back December last year (i got four years remission from SCT #1) was put on Velcade…[Read more]
tom replied to the topic multiple myeloma relapsed – treat with Velcade need your advise in the forum Treatment 10 years, 4 months ago
Hi Marge
well I have been on the Velcad for 5 months now, it stopped working on month three so i have had Cyclophosamide to the mix side effects ?? am tired and weary more so as the other one was added,apart from that Not much else as yet, to be fair its ben kind to me 🙂
Good Luck with it
Tom Onwards and Upwards xx
tom replied to the topic Stem cell transplant booked for Wednesday 9th July 2014 in the forum Treatment 10 years, 4 months ago
Hi Deborah
I had mine in 2009, got four years out of it and that was great, yes I was bloomin cold in the room should have taken my throw in 🙂
Mouth wash now I used bottles of it every time i went to the loo, walked past it thought about the loo I mouth washed (they will give you more lol) , cant emphasise enough to use moth wash as often as…[Read more]
Debs started the topic Conga through West Wycombe Park – 40 Challenges B440 – Challenge 38 in the forum Off topic 10 years, 4 months ago
Some of you may know that I am aiming to complete 40 Challenges before I am 40….and Challenge 38 is to get 40 people to conga through West Wycombe Park, a beautiful National Trust property in Buckinghamshire. Please come along and support the event, and come and see me on the stall I will have in the Main Marquee too 🙂 To find out more about m…[Read more]
tom replied to the topic My Stem Cell Transplant Journey in the forum Treatment 10 years, 6 months ago
Hi Keith
Well done you 🙂 and you can be forgiven about memory loss after what you have gone through
Stay well my fiend its all Onwards and Upwards now
Tom Onwards and Upwards x
tom replied to the topic Worried about Dad in the forum Treatment 10 years, 6 months ago
Hi Clover
well I think its all ben covered by the great posts above.
Its a roller coaster of a ride for your Dad am sorry to say but he will get through it, you all will, you dont say how old your Dad is ? nor how old you are ?
Good Luck to your Dad on his road to remission.
Tom Onwards and Upwards xx
tom replied to the topic Graham is in full remission in the forum Treatment 10 years, 6 months ago
Congratulations to you Both am well chuffed for you both.
its what we all aim for,I hope Graham is now drug free for many a years its a great feeling I had four years drug free remission, we went and done what we wanted to do with no restrictions.
Get out their now and enjoy Life, once again well done and have a great time.
Love Tom Onwards and…[Read more]
Debs started the topic Can you help? in the forum Off topic 10 years, 6 months ago
I haven’t been on here for a while so I hope that people will still think about helping.
I decided this year to do 40 Challenges B4 40 to raise money for Myeloma UK before I hit 40 in January 2015. The plan is to try to raise £10,000 through various challenges, and through getting other people involved. I hope that it will also help to raise…[Read more]
tom replied to the topic Living with myeloma book: your hints and tips in the forum General 10 years, 6 months ago
Hi David
Thats great  to hear ist finished but as I said when you started it ” No Rush to Use It” al keep checking and see
Take care David and stay well
Tom Onwards and upwards “Vasbyte” x
tom replied to the topic Any experience of DTPACE? in the forum Treatment 10 years, 6 months ago
WoW Sarah
What a photo well done you its a great one I can tell you.
Good Luck to M now its on the go, its tiring in hospital as it is let alone the regime that M is going through  and am sure you all know I wish him luck and few side effects on his road to remission
Love Tom Onwards and upwards xx
tom replied to the topic Relapse in the forum Treatment 10 years, 7 months ago
Morning Rebecca
Not sure who will be doing the BMB Dr J did the last one and it was Ok ? Helen done two on me and I had one done in castle hill and that was the worse one .
As for the PN so far its not a problem ? I feel something but nowt to talk or write home about it was worse on my CDT just got rid of it for the darn MM to kick back in again…[Read more]
tom replied to the topic Any experience of DTPACE? in the forum Treatment 10 years, 7 months ago
Hi Sarah
Am sorry i have no knowledge of the regime your Hubby has been put on just wanted to wish you both well on the road to remission.
Tom Onwards and Upwards  xx