Dear Tina

I am so sorry to hear that Patrick lost his brave battle against this B dard Illness.

My thoughts and prayers are with you and your Family.

Love and hugs at this sad time xxxxxxx

Tom

Hi Eve

Am pleased Slim is getting better 😀 I know its been hard to wait but honest the wait is worth it 😎

When I was poorly then got better I used to count the Good days that had no bad ones following it and Lord was it Good, as for now I am Months and months of Good Days 😎 and Slim will do same 🙂

Love to you Both

Tom…[Read more]

Hi mike. I,m not surprised that you took some time out…there's a lot to take on board at the start. I'm glad to hear it's all started off ok though! I'm now on velcade but have a feeling it may not be respondig much now. Got 3 cycles from revlimid and looks like it could the same with the velcade. Find out more in a couple of weeks. How did u…[Read more]

Dear, dear Tina,
I have only just come online and read this and wanted to say just how very sorry I am for your loss. When I met you it was so apparent what a strength and support you were to him throughout your journey with this disease. My thoughts are with you and your family so much and I hope and pray you have many many happy memories of him…[Read more]

Oh Jo here is Tom walking away Blushing he he 😎

Hi Marion

Ye its hard even for me and I am 55 years young 😀

As its hard to understand a fast talking Dr why dont you ask to have a copy of the notes that is sent to your dads Dr 😀 that way it can be read and re read until its sinks in 😎

I also have my fingers crossed for your Dad

Love

Tom "Onwards and Upwards" xxx

Hi Marian

So sorry to read your Dad has MM, but you have come to the correct place here for help and advice 😀

I was told in 2009 that I had MM and have had a stem cell transplant and doing good, do you know what treatment your Dad will be having? as we all have different treatment due to the MM

I wish your Dad well in his forthcoming…[Read more]

Hi Eve

Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)

Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/

And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀

Good Luck and…[Read more]

Hi eve

Just wanted to say firstly to keep strong with slim and remember all the experts you have working with him. He sounds like a fighter too so hopefully you'll look back on this in a month and wonder what the worry was about …I hope so as you're v inspirational people!
As to the complaint , I'm with Tom…..would take awful lot for me to…[Read more]

Hey Eve

Trust me girl us lot are not easy to offend:-D and it must be the Skool prefect that felt it might be dodgey 😎 I know I have tried to use MANY a cuss word and it wont let me He he (but av found a way round it ha ha.)

Hope you and Slim are doing OK

Lots of Love from one "Unaffected bout comments" Tom xxx

ps let me know if…[Read more]

Hi Dia

All the best for tomorrow, and am with you re Janet and rain 😎 it will be ok for me if it rains every nite and the sun is out daytime 😎

Tom

Hi Bridget

Sorry to hear you are feeling poorly 🙁

I am same as all our other friends above, but I was told never to suffer pain or any doubts at all and if any rear its ugly head I am to go straight up to the ward 😀 and I have used it twice so far and its great no waiting no worries 😎

hope all is well and its put down to heavy…[Read more]

Ah Sharon,

You'll be fine hon. HOw come you have to go in for a few days though??? Remember to call me if you need anything at all….even a rant!!!

Take care. Lots of love
Debs x

Hi Liz

I also have not been on for some time 🙁

But am pleased Kev is doing good 😀 I also (like many more) had a rash as well, but like all my other bits it all worked out great 😎

Good Luck

Tom xx

Hi Sheff,

Like the others on here, I am so sorry to hear about the loss of your father. I think it hits us all hard everytime that we hear of someone passing away, but it is even harder when you know that the family have suffered so much with the way it has happened. All my best wishes are with you and your family over the coming weeks and…[Read more]

Good luck from me too Dai…hope you manage to persuade him….I'm wondering about asking Prof Morgans team when I go in next week as I already have PN from velcade…mildly I think (numb feet, and now slightly painful calves and arm muscles!), but I'm only on cycle 2 and you don't normally get anything till cycle 3 plus.

But I think I know the…[Read more]

Aahh, Gaye,

So sorry to hear that the pain is still bad for you. Must be so hard….bad enough dealing with the damned disease anyway, without that on top of it all. But I am really chuffed to hear that all is going well with the pomalidomide…that is good news!

And just to join the…[Read more]

Hi Jonny,

How are things going with you? Hope treatment is going ok and you're not suffering too much.

Just wanted to catch up and check in on you!!!

Debs x

Hi Mike,

Just thought I'd see how you were doing as you must be into your second week of revlimid now? How has it been? Any major side effects? Meant to mention that your taste will probably go up the spout…but you probably know that by now! I remember my consultant saying I could have a glass of wine if I wanted but that I wouldn't…didn't…[Read more]

Hi Andy

Sorry to hear you got the diagnosis so young. I was 34 when diagnosed in 2009 and felt like it was really unfair!!
Hope you're being looked after well…think you'll like the under 50 site though if you email Scotty!!

Debs x