So glad that it has arrived for you Gaye!!

As Tom would say, 'onwards and upwards'!
Debs x

Hi Amanda

Welcome on board to you, and your sister and mum if they choose to use the site too. It is definitely a fantastic source of information and support, and I for one, have stopped looking elsewhere for answers as it is always out of date!

I presume that your mum has been diagnosed with assymptomatic myeloma if she doesn't yet need…[Read more]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes…[Read more]

Hi Tracey,
Welcome to the site and hope that it helps you as much as it has helped me!
Can't say much about CTD as am on a different drugs regime, but just wanted to mention (in case you don't know) that you can't be tested for coeliac's if you have given it up….they need you to have been on it fairly constantly I think. This is said with my…[Read more]

Hi Tracey

May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

Good Luck on your treatment.

Tom "Onwards and Upwards" xxx

Hi Roz
And you are more than wlcome, and am pleased it/I make you smile 🙂
So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

Hugs and Love sent your way keep strong Roz

Tom xxxx

Hi Nigel

And a warm welcome to our little band.

I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

As you know or will find…[Read more]

Good Morning Roz

Am pleased you never left this site so no reason to say you have come back 😀

Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

Am sure the Goverment could link it all together and all that needs to be done…[Read more]

Morning Tanya

Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

Good Luck on Monday and I hope he gets the OK for the infusion's.

Tom "Onwards and Upwards" xx

Hi Eve

When you say its a bit complicated well dont i know it, and am sure she would want to know? but you know her better than I.

The main thing is for you Both to stay strong and fight this bloomin MM and try not to "Store Problems" I know its not as easy as that :-/

And the comment you made bout cheering you up has left me feeling…[Read more]

Hi Henry
Well a warm welcome to you 🙂

Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

All went well but as we all know we have our Off…[Read more]

Hi there.

Sorry to hear that Patrick's having a bad time with cramps Tina….can't be pleasant at all…then again, what is with MM!! Hope yours aren't too bad either Gaye.

Think I'll be off the revlimid soon….I seem to have plateaud so it looks like in a couple of weeks I'll be randomised (within the Myeloma XI trial) for either velcade…[Read more]

Hi Eve
I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

And as for worrying? well I worry about not worrying ha ha.

Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

As for it changing our lives?…[Read more]

Hi Ruth,
I am so sorry about the news about your husband….of course you are upset and worried about him, and for your children.
He is really young, I was 34 (with a then 2 and 4 year old)when I was first diagnosed with asymptomatic myeloma in July 2009 and I started treatment November 2010. When you first hear the news, it is terrifying, but,…[Read more]

Here you go Jon….Scotty and Phil's email addresses….Scotty is often abroad with work but email them both and one of them will sort you out with an invite

phil.kelly2@btinternet.com

c.scott@added-value.com

See you on there.

Hi again Jon,

We're real rebels on this bit!!! Not really. I think Scotty and Phil set it up originally for people that bit younger who have slightly different concerns. Work, young kids etc. And the idea that with all that, that life suddenly looks very different when you're diagnosed with MM.

If you go onto the main bit you can get Scotty…[Read more]

What great news Nicki…..hope all goes well with the house move and that you have a lovely break in Poland.

Happy Wedding Anniversary 🙂

Love
Debs x

Hi Jon,

Welcome to the MMUK site and I think and hope you'll find it a great place to get info, support and friends! I don't think I could have managed without this and the Under 50 site. That, and like you say, a hugely supportive group of family and friends.

You don't come across as arrogant at all….very positive, especially considering…[Read more]

Hi Jon
May I welcome you to this Great site 🙂 its not one we would want but seen as we have MM its the best going, as well as the Under 50'S 😎

Am same as you in the fact My Wife Family and Friends have all been very supprtive through all this and we (even i) have a lets get this party rolling and sort it sort of mind's:-D

Good Luck on…[Read more]