So Moving Roz, think it is I that needs the "Cyber Hug"

Love and hugs to you all

Tom xxx

Hi Jonny

So sorry you have come across one Consultant that has no Bedside charsma (so to speak)
But like all us mere Mortals you either have it or you aint and your man bless him aint got it.

Mine is great I even chat to him in the middle of the shpping centre when he is out shopping 😀

As for me if mine was abrupt or rude he would…[Read more]

Hi John

A warm welcome to this warmhearted group,sorry you had to join, but you will get some great support on here when you need it, and at strange times in the night (Dex)

Lets hope the two monthly watch lasts for years 🙂

Tom "Onwards and Upwards"

Hi Gavin,

Things have gone pretty well with the trial so far, and I have to say, in comparison to what I had expected (The devil dex days you hear about, and the sickness etc) it has been much better. It sounds like CRD is slightly easier to tolerate than CTD although I don't know if that has been proven. I haven't had the response to dex that…[Read more]

Hi Ron,
Sorry to hear that your wife has been diagnosed with MM….it is a hard diagnosis for everyone who goes through it. Breathlessness can be a sign of low hb levels….which in turn can be a sign of the myeloma progressing. BUT, don't panic because quite often, the two aren't linked. I got breathless just after I'd had a dip in hb…[Read more]

Happy New Year David, and all my On line Friends 😀

Hope this year is better than last year, and any treatment you/I might need cause little distress nor side effects 🙂

Tom

Hi Roz

It sounds like you are doing Ok so far with the difficult situation.

Did I get an Email from you? (i think i did)

Good Luck for the cremation.

Love and Hugs to you

Tom xxxx

Well I also completed the online form, as i was am one of those that would need it.

Hi Gavin,

Sorry you're going to have to start treatment, but hopefully now it will help keep the myeloma at bay. Where are you being treated by the way? I started on the Myeloma XI trial 7 weeks ago and have been lucky enough to get revlimid…will hopefully find out next week how it is affecting my paraprotein.

Let me know if you have any…[Read more]

Hi Jonny,

I had something similar. My consultant in Bucks just made me feel like I was asking silly questions (and believe me, no question is silly with this), like I was being overly paranoid and like I should just go home and accept it all quietly. At the same time, he hadn't even heard about things like curcumin.

We got a second opinion…[Read more]

Just to add my bit, I've been on the Myeloma XI trial for 6 weeks now. Like people have said, I think different drugs affect different people in totally different ways. I haven't had any major side effects from the revlimid, but have been tired and get quite breathless. I also had the rash for a few days, but found that it calmed down with piriton…[Read more]

Hi Roz,Rachael and Lauren

Thinking of you all Today, and hope it goes as smooth as it can.

And not forgeting you Roz you must look after yourself in the comming days.

Love and Hugs to you all

Tom xxxx

Hi Keith
Sorry to hear bout your pain 🙁

Its a bit of a bugger really, me am not sure what bone pain is? do I have it? have I had it?or will I get it?

Me I think I have had pain most of my adult life what with pulling back bruised ribs pulled muscle's, and they tell me it Arthur-Rightus he he

Good Luck Keith 🙂

Tom

Dear Roz,

I am so sorry to hear about Michael. All my best wishes, thoughts and prayers are with you, your daughter and granddaughter at this such difficult time.

Debs x

Morning Gina and your Mum

Yes thank you had a great Poitive Christmas this year as last one was a tad low key as i had just had my SCT start of December.

And it worked so this year the Boat nay Boat's have been pushed out, av ate and drunk for England Lol,Lord knows what my Consultant will say when i get on the scales in Jan lol.

Hope…[Read more]

Hi Mari and Steve
Wonderfull News for you all, and it is the best Present any of us can have.

Last year I was not on top form what with having my SCT 3rd December so xmas for us was low key:-( BUT this year I am on top form and just to prove it I am posting two photo's one of last year and one this year to prove that the SCT works a treat 8-)…[Read more]

Hi Amelie

Yes that is correct, and I aplaud you for using your musical skills to highlight our plight with MM.

Yes it is a Cancer that is well behind all the others at the moment but with people like your goodself am sure it will soon be brought to the forefront 😀

Once again Well Done and Thank you

Tom "Onwards and Upwards" xxx

Dear Roz

I am truly sorry to hear that Michael has passed away.

Roz you did a wonderfull job looking after michael's welfare and fighting his corner when he himself couldn't fight.

my Condolences to you all and please take care of yourself more so in these next few months.
A Little one of Tom's "Cyber Huhs" to keep you strong and healthy…[Read more]

Hi Amelia

Good Luck on the speech, such a daunting thing to do am sure.

As Vicky says its an Individual illness and a difficult one to spot even the Dr's struggle:-S

So I wish you Luck on your Speech Day 😎 it will be terrific

Tom xxx

Hello Dear Roz

Great Photo 😎 by the way.

And as Lynne says the funerals should take care of all that for you.

I hope you still have my Email as and when you are ready to chat.

A "Cyber Hug" on its way WWwwwwwooooooOOoooSSsssssHHHhhhh there you go Roz one of Toms iccle "Cyber Hugs"

Lots of Love

Tom xxxxx