tom replied to the topic medical alert in the forum General 11 years, 10 months ago
Hi Megan
I was given "The Card" but I don't carry a wallet and the bracelet works for me.
And it's important that we have the information about our bloods and our MM
Tom xx
tom replied to the topic Just been diagnosed with Myeloma in the forum Newcomers 11 years, 10 months ago
Hi Susan
A warm welcome to the site.
Am sure I can't advice you what to do, but I can tell you I was on CDT then onto a Successful SCT all in 2009, I am now in remission and drug free and still doing well , it has had it's moments over the year and a bit to be fair but it is a doable .
Where are you being treated ? As some on here might be at…[Read more]
tom replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Tebebe
Your more than welcome, am please you found a site that is specifice to you, but pop in every now and then and let us know how you are getting on.
Love Tom Onwards and Upwards xx
tom replied to the topic medical alert in the forum General 11 years, 10 months ago
Hi Phil
I have an SOS Talisman Bracelet Like one here ::::http://www.medical-bracelets.co.uk/SOSBracelets_Men.shtml
Got mine Localy and it has a "Fold up sheet" inside that gives you space to put Contact details, allergys and things that need to be told to medics before treatment starts, hope you never have to use it 🙂 but it puts my mind…[Read more]
tom replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Tebebe
Sorry you had to join 🙁 us but a warm welcome anyways now you are here.
Seven Children wow I have three Sons all grown up and yes I/we found it pretty easy to tell the kids as we had been through it before with my Young bride (breast cancer) but I know its hard, it depends on how old the Children are as to how much I would tell…[Read more]
tom replied to the topic Round 11 RCD in the forum Treatment 11 years, 10 months ago
Hi Andy and all
Pleased your doing Good Andy and I as a MM'er super glued my fingers crossed lol (only joking lol) your doing well Andy and am sure its a blessing for those that have had to start new treatment to know people like you do well with it 😀
Keep going strong My Friend and stay strong.
Tom Onwards and Upwards x
tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago
Hi Peter
And I got this in my Email :::::
PeterJames has posted to a discussion you're monitoring:
Subject:
RE: Harvesting for SCT
Message:
Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but…[Read more]
tom replied to the topic About to begin treatment – but which one ? in the forum Newcomers 11 years, 10 months ago
Hi Lesley and Jill
Sorry I cant help on this one, Just wanted to wish you Luck.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Remission in the forum Treatment 11 years, 10 months ago
Hi Tina
And a well done young lady,am sure you will get a Long Remission out of your treatment, good luck Tina.
Love Tom Onwards and Upwards xxxx
tom replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi Liz and Kev
Yes Elaine and I are doing great Thanks 😀
Kev will have same as Elaine the "Tattoos" for his R/T Elaine had 25 sessions of R/T in 2008 and did pretty good with it 😎
Its like your rink here in Sunny Scuuny am afraid, I just hope the dog dunt pull me over when i take him for a walk Lol.
Good Luck and am sure the RT will…[Read more]
tom replied to the topic Second anniversary visit to haematology in the forum General 11 years, 10 months ago
Hi All
Well who has put a Great Photo on 😀 you both Look great and yep you scrub up real well (not that either of you need to )
Love iccle ole me xxx
tom replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi You two
Well I hope he can get infection kicked out and get on with treatment,its bad this time of year no matter wher you are some one is infected with somthing and are only to keen to pass it on 🙁
It looka like the revlimid Is working 😎 so it is good if infectios is sorted.
Get well Kev and keep away from those with germs…[Read more]
Debs replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago
Hi Megan and Phil
I've just read this post for the first time and wanted to say Welcome Home Phil. It made me cry reading the post, just because it brought back memories of the journey that Nick and I went through 18 months ago. I remember so well, those first steps outside of the hospital room and what a HUGE achievement it was 🙂
As…[Read more]
tom replied to the topic First time diagnosed in the forum Newcomers 11 years, 10 months ago
Hi Paul
A warm welcome to the group, it's not an easy task Paul but you can do it, I did it in 2009 bit rough at times but trust me well worth it.
Good Luck in your road to remission.
Tom Onwards and Upwards
tom replied to the topic Yes it has bombed in the forum Treatment 11 years, 10 months ago
Hey Keith
You know am sorry it never worked 🙁 you have been through the mill with it.
I hope the CDT works for you, just to let you know it was my first attack on mm was that and it put me into remission, I hope it works the same for you.
Good Luck with it.
Tom Onwards and Upwards
tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago
Hi Lesley
Your more than welcome, now don't forget any question you feel you need to as then fire it in here ????nothing is too much to ask you now you are here will always have an ????to bend.
Love Tom Onwards and Upwards xxx
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Hi Lisa and Mick
We have a few on here doing great and not having a SCT and I think the Dr's are nw thinking that its best if we don't have one ? .
I was a bit washed out during my CTD but it came back,not same as I used to be but doing good.
Stay well .
Love Tom Onwards and Upwards xxx
tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago
Hi Lesley
Its not a walk in the park to be honest BUT it is doable as we say I have had mine since 2008 (ish) CTD then SCT in 2009 and am now Drug free and doing well8-)
Stay fit and take it one day at a time.
Love Tom Onwards and Upwards xx
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago
Hi Megad and of Course Phil
Well Done you two, sat at home as proud as punch and so you should be 😀 .
Now I need to say this first, Now you are home Phil its not all done Please take your time and keep your temp checks regular as it will take you a few more months before you feel the difference, if like me I woke up one morning and knew Just…[Read more]
tom replied to the topic Raise your hand if you hate dex lol in the forum General 11 years, 10 months ago
Hi Stevo
Its been a long time since I took them and used to take 10 Tabs @ 8 am and another 10 Tabs @ 11 am, was I bad with them ?? Lol I once asked the young bride (elaine) if i was bad on dex? and she just tapped my arm and said "Its over now your better! and walked away ? am sure that means I was Bad lol.
as the Ladies say its like having…[Read more]